Dr. Aimee (Amy) Nefcy

speaker

802 appearances 1 recordings 1 series first heard Dec 2025 last heard 20 Dec

Dr. Aimee (Amy) Nefcy’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months

Recordings per month over the last 12 months — 1 in all, peaking in Dec 2025 with 1.

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The Neurotransmitters: Clinical Neurology Education · Beyond Tired: Understanding ME/CFS · 20 Dec 2025 podcast

You know, like a supplement is, you know, probably not going to be a problem.

And I have jumped on the supplement bandwagon.

If it's something that's been studied with ME-CFS and there's a study out there that showed benefit, I'm going to try it.

And I think that as a toxicologist, I'm more inclined to off-label use because a lot of what we do in toxicology is off-label.

And I'm comfortable with NAC and carnitine and things like that because we use it all the time in toxicology.

So I am taking both.

And, you know, I don't know necessarily what works, but I'm going to take them until I start feeling better.

you know, eliminate one by one and see if I can tease out which one, if any, is helping.

But one of the things that, you know, we discuss in group with the patients that have gotten better is really it's not about any one thing because we don't know what causes this disease.

And so if you have a medication or a supplement that gives 30% improvement in functioning and

You know, you take that and then you do another one that has another, you know, 10% improvement.

You know, it's all little tweaks here and there.

And it adds up over time.

And you combine that with aggressive pacing and people can eventually improve to the point where they can leave the house and have a semi-normal life.

They can't do all of the things that they used to do.

And physical activity is not one of the things usually like, you know, they're not going to be out there running a marathon or something like that.

But a lot of them exercise.

And some of them describe being in that dark state where they were closed off to sensory input and sometimes were so bad that they couldn't even eat properly.

you know, that the physical exertion from eating sometimes makes people worse with ME-CFS.

So when you hear about deaths from this disease, it's almost always from people who have basically starved to death.

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