Dr. Aimee (Amy) Nefcy

speaker

802 appearances 1 recordings 1 series first heard Dec 2025 last heard 20 Dec

Dr. Aimee (Amy) Nefcy’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months

Recordings per month over the last 12 months — 1 in all, peaking in Dec 2025 with 1.

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The Neurotransmitters: Clinical Neurology Education · Beyond Tired: Understanding ME/CFS · 20 Dec 2025 podcast

When is this supposed to kick in?

And it didn't.

But my ferritin levels have been fine ever since then.

And that infusion was almost two years ago.

And I have continued to get worse.

And by that point, I had looked at what the differential was on fatigue and had seen chronic fatigue syndrome in there.

But I dismissed it because it includes some things like water.

orthostatic intolerance and what's called post-exertional malaise.

And I thought, I don't have any of those symptoms.

So, you know, I didn't think that it was that.

But as I continued to not improve, my sleep neurologist said, kind of as like an offhand comment at one point, she was like, well, maybe you have chronic fatigue syndrome.

So I started thinking about it more seriously.

By that point, I had seen quite a few physicians.

I saw a

rheumatologist because at one point I had a positive ANA because we were doing all the lab tests and nothing was really coming up positive.

I didn't have symptoms of a rheumatologic disease, but I thought maybe it would be worthwhile to see rheumatology.

And I spoke to a very nice fellow who was a

you know, attentive and listened to me and asked good questions.

And when I was done telling my story, she sat back and said, you know, this is fibromyalgia.

And I was flabbergasted because, you know, when I did my training, fibromyalgia was a pain syndrome.

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