Dr. Aimee (Amy) Nefcy

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802 appearances 1 recordings 1 series first heard Dec 2025 last heard 20 Dec

Dr. Aimee (Amy) Nefcy’s voice in public audio — every appearance, attributed to the second.

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Recordings per month over the last 12 months — 1 in all, peaking in Dec 2025 with 1.

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The Neurotransmitters: Clinical Neurology Education · Beyond Tired: Understanding ME/CFS · 20 Dec 2025 podcast

So I thought, OK, this this is what orthostasis is, you know.

And so I went back to the neurologist and

Talked about this with him and he said, well, let's do a tilt table test.

And, you know, you still don't have an answer for your fatigue.

So we could do, you know, if you do have dysautonomia, you know, oftentimes there is, you know, problems with nerve conduction.

So let's do an EMG test.

and see what we find out.

And the tilt table test was, the final interpretation was that it was negative for orthostasis.

But when they stood me up, my heart rate jumped up to 120.

My blood pressure didn't drop though.

So I was told that the heart rate increase must have been due to a quote unquote panic reaction.

And so the tilt table test was interpreted as negative.

I've since read that the tilt table test can be negative in up to 50% of ME-CFS sufferers who have symptoms of orthostatic intolerance.

And that a better test would be to do the tilt table test along with doing a monitoring of cerebral blood flow, which is usually done transcranially with, I think, like Doppler sensors.

And that that is a much more sensitive test.

So I never had that done.

Right.

There's a lot of literature coming out now, though, that I think is going to change it.

I think in the future, we're going to probably have something, some sort of brain monitoring during a tilt table test be standard.

Yeah, absolutely.

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