Dr. David Fajgenbaum

And you're like, oh, there's one drug right there.

That's exactly right.

And so I told one of my doctors and I went through all the data and I just said, like, do you think that we should try this?

Like, I know it's never been used before for Castleman's, but like, can we try it?

Like, should we try it?

And his thought process was like, probably it's about a 10 to 20% chance it could work, but it's a 0% chance if I don't take it.

And I'm willing to take that risk.

And so he said, yeah, I'll prescribe it.

It's a pill.

It's three pills.

Well, at first, I took five pills, and now it's three pills.

But within a couple days, I started to feel better.

And the blood work started to get better more rapidly than it would have otherwise.

But again, I still wasn't ready to say, like, this drug is working.

And so for me, I was like, I'm not going to get my hopes up.

It's going to be a test of time.

Am I going to make it to my wedding day?

Am I going to make it a year?

Am I going to make it longer than that?

And yeah, just four days ago marks 11 and a half years that I've been in remission on this drug.