Eileen Devine
speaker
327 appearances
1 recordings
1 series
first heard Nov 2019
last heard Nov 2019
Eileen Devine’s voice in public audio — every appearance, attributed to the second.
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And unfortunately a lot of this is about us and changing our perspective, adjusting our expectations and really putting changes into the environment that we as the adults are in control of.
Yeah, that's another great question that a lot of parents have.
So the the the one big missing piece in the research for parents of kids with FASD is that there really isn't a whole lot that tells us from a research based perspective.
what happens with these kids as they grow into adulthood.
It's just not there.
And so then we start to look in our communities and um of course with Facebook and all that kind of stuff, able to see a lot of adults now who have FASD, who are out there in the world.
Um so that's that's one piece and I'll speak to what we see there in a minute.
The other piece that I really want parents to understand is that
Um this is a permanent brain based disability, right?
And so even with what we know about brain cells being able to regenerate, it's actually uh that's greatly diminished in terms of kids who have been prenatally exposed to alcohol, that ability to create new
brain cells and that sort of thing is is not there in in the way that it is for, say, a child who has a traumatic brain injury um later on in their life and is is is coming back from that.
So I don't I want to be really clear with parents because what we do see with these adults is that they mature and they grow just like all of us do, but it is at a very different pace, a much slower pace.
Their trajectory is just their very unique trajectory.
And they um still require levels of accommodation that you would not expect um when you are thinking about, you know, a twenty something year old child that you, you know, quote unquote launch into the world, right?
And so part of my practice is also working with adults with FASD.
And all of them rely greatly on the support of their community, usually family.
They do live independently.
I'm trying to think if any one of them has not.
They all have lived independently, but with a lot of support from their family.
Working, absolutely, but again, accommodations at work.
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