Eileen Devine

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327 appearances 1 recordings 1 series first heard Nov 2019 last heard Nov 2019

Eileen Devine’s voice in public audio — every appearance, attributed to the second.

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Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children · TPP 185: Eileen Devine on Supporting Children with Pre-Natal Substance Exposure · 25 Nov 2019 podcast

But one of the ways is opening me up to this wonderful group of parents that that I've come to know and this whole other world of neurodiversity that just does not get any sort of, you know, conversation.

There's no discussion.

Um, there should be much more than there is now.

So that's part of the work that I hope to do in working with these parents.

Yeah, so when we look at the brain and the brain development, we of course know based on neuroscience research that there are all these d almost an overwhelming number of reasons why a brain can be changed in structure and why um it can function differently than than what we would consider a a neurotypical brain.

Um and so when we look at how behaviors are always connected to brain function, I mean the two cannot be separated, neuroscience research tells us that too.

Then when we have kids whose brains work differently, no matter the reason, then the the phrase that kind of encompasses that is neurobehavioral conditions.

Um so they have a brain-based disability or difference that results in behavioral symptoms.

Um, most of those behavioral symptoms very challenging for the parents who parent them.

Yeah, absolutely.

Happy to.

So fetal alcohol spectrum disorder.

So it is a spectrum disorder.

It is and that is um the diagnosis that my daughter has.

Um, it is the leading cause of developmental disabilities in the westernized world.

So if we think about that, um that is an awful lot of people impacted um in our world with this condition, but very, very little talk or information about it in comparison to other, you know, neurobehavioral conditions, say like autism, for example.

Now, even with that statistic, we know that there's estimates that as high as 80% of people who actually are living with FASD, fetal alcohol spectrum disorder, are not diagnosed or misdiagnosed.

And so there's lots of reasons why I believe that to be the case, much of it around stigma in terms of prenatal.

Um, drinking and substance use exposure and providers not thinking to ask those questions or not wanting to ask those questions, feeling uncomfortable themselves.

But regardless, the fact remains that there's a whole lot of other people who are out there struggling with this condition who are not diagnosed or misdiagnosed.

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