Kiona Tapley

I freed up my schedule to visit today since they only open once a month.

Yeah, I mean, I think when she first was diagnosed, we thought, oh, she's going to take the normal route and, you know, she's going to have chemo and it's going to be really tough, but we're sort of going to get through it.

And then when we found out all the other treatment wasn't working and we actually got to the point where they were talking, you know, they said, we're not looking to cure the leukemia now.

We're just looking to keep her comfortable.

And you go from a place where you've got absolutely no hope whatsoever.

And although it was in Great Ormond Street and we knew she was taking part in this trial, you've had such negative news.

Part of you really wants to make it work, but then also a part of you thinks, you know, if it works, it's a miracle.

And at that point, it's quite difficult to sort of believe in miracles after everything you've been through.

And when they first told us, it was...

You just couldn't quite believe it.

You were just waiting for them to turn around and say, no, actually, you know, we've got it wrong or it's not because it just completely sort of came out of the blue.

It was such a long shot that it was going to work that when it actually did.

Yeah, it's just unbelievable.

It's crazy.