Molly Burke

speaker
1,048 appearances 2 recordings 2 series first heard Oct 2025 last heard 21 Dec

Molly Burke’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months
1 · Dec OctJan 26AprJulnow

Recordings per month over the last 12 months — 2 in all, peaking in Dec 2025 with 1.

Appearances

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You don't understand that at five years old.
You don't understand that at eight years old.
You think that they're telling you, and I'm sitting in these rooms surrounded by doctors and scientists and researchers who are telling me, all of what you're doing is gonna help find the cure.
So in my mind, like there's going to be a cure.
I mean, they literally told my parents in 10 years, we believe she'll be cured.
That was verbatim what they said to them.
And so that was not only what I thought, but what my parents thought, because again, my parents don't know anything about disability.
I was their first contact with disability, was their own child.
And so they're being told by the people that they're meant to look to, the specialists, the experts,
for advice.
And when they're being told there's going to be a cure, they believed it too.
Yeah.
And I under, like I said, I understand now it was optimism, but I think, and I, and I also, I think I always say, I, I don't have a problem with, with medical research.
I have a problem with the PR team.
I have a problem with the marketing.
Because a lot of times the way we market medical treatment and research is by pitying the disabled or sick person.
We talk about how awful it is that they are suffering from.
And when my whole life, the language around my blindness and my eventual vision loss was this poor girl isn't going to be able to see in the mirror, isn't gonna be able to see her child smile one day.
It's all this like sad language around what became my eventual reality.
I internalized all of that because that's how these organizations speak to pull at heartstrings to get the money they want is it's a lot of like sadness, pity.
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