Rachel Madel
speaker
4,333 appearances
28 recordings
1 series
first heard Aug 2024
last heard 21 May
Rachel Madel’s voice in public audio — every appearance, attributed to the second.
Trend
recordings per month · last 12 monthsRecordings per month over the last 12 months — 7 in all, peaking in Oct 2025 with 3.
Appearances
He is a complex kid.
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Eye gaze while eating
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Easier than switches at this point is still taxing.
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CVI makes his vision very dependent on his surroundings and his health.
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Still, I wonder if it is worth continuing with this level at eight years old.
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Just to have to change up his system again and relearn.
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My husband and I have always been the ones to initiate any changes to his system, and for the most part, it has always worked out for Thomas in the end.
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Seeing this pushback on our idea for the next step forward, we're left wondering if we would be doing the right thing.
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I think our question comes down to what do you look for to decide when to proceed to the next step?
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If we were to choose to move ahead, what should we be looking for to make sure it was the right choice?
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And what is a the appropriate amount of time to try it?
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Finally, I would ask if there are any cases when someone's disability really does make working with robust systems too difficult and it's more beneficial to just work with a pared down system.
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Oh, I got a little emotional at the end of this, Chris, because I feel like this is one a very common experience for families, unfortunately.
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And I think that Stacy is facing a lot of people who might not be presuming potential with Thomas.
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And so I just, yeah, was like choking up a little at the end because I feel like
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Like it's so it's so hard to watch a family struggle and advocate for their child and to be met with um some resistance.
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Uh and I can totally see how Stacy might be feeling super conflicted about making these decisions because you know ultimately when you have people who are saying, No, we don't think this is a good idea, um, then of course you're gonna start questioning.
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things.
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So those are my initial thoughts, Chris, but I'm curious what your thoughts are.
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Yeah, and exactly.
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