Rebecca Sudore
speaker
816 appearances
5 recordings
1 series
first heard May 2017
last heard Mar 2022
Rebecca Sudore’s voice in public audio — every appearance, attributed to the second.
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sort of during the time that somebody, you know, had an event or, you know, got care at the very end of life, it's really, really, really hard to measure.
So that's but that's in this quality of care bucket, as is things like
congruence or agreement between what the patient says they want and what the surrogate will say that they want for them, and satisfaction with things like communication and decision making.
So I think what's interesting about this quality of care bucket is that very few, like ten percent of the studies looking at qual you know, goal concordant care.
were positive.
So that's it, just 10%.
But when we looked at agreement between patients and surrogates and patients and clinicians, something I will say in the prior literature had kind of shown mixed results.
88% really high number of those congruence things were positive, which actually felt good to us because it seemed like people were probably having more conversations, focusing more on this process, and really kind of more understanding each other.
Um, in terms of satisfaction with communication, all of those outcomes were positive.
Patient satisfaction with communication, surrogate satisfaction with communication, and they actually in one study asked clinicians if they felt satisfied with the conversation with somebody who had done advanced care planning, and the clinician satisfaction was high.
Um so that is great too.
When we look at satisfaction with decision making and satisfaction with medical care.
That was very interesting because it was much lower for patients.
for both of those things, but much higher for surrogates.
So surrogates were reporting high satisfaction with decision making and and medical care.
Um I'll just say very briefly when we look at uh things like health status, so patients quality of life and health care utilization.
Those things were really mixed, and I would say mostly negative.
But the thing that really stood out to Ryan and I is particularly when we looked at health status outcomes, is that all 100% of the outcomes that focused on things like surrogate depression and anxiety, PTSD, complicated grief, caregiver burden, and one study that looked at caregiver distress.
All of those were positive.
And so, even though we had these mixed results, Ryan and I were like, Okay, we know.
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