Rebecca Sudore
speaker
816 appearances
5 recordings
1 series
first heard May 2017
last heard Mar 2022
Rebecca Sudore’s voice in public audio — every appearance, attributed to the second.
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Appearances
They put
Advanced directive forms, they put pulsed forms, they put goals of care conversations about very end-of-life treatment.
They put in shared decision making for serious illness.
My personal favorite preparation for in-the-moment decision making, um, you know, which is what our prepare programs focused on.
And so I think when we think about these studies and we say, Oh, it worked or it didn't work.
Like what is it?
Like what are we talking about?
I think one of the things that Ryan really helped me with in the paper, we have a figure in the paper that talks about all the pillars of advanced care planning.
And in these pillars, there are multiple things.
It's not one person or one thing.
You could have interventions that focus on patients, you can have interventions that focus on clinicians, you can focus on the community, you can focus on clinicians, you can focus on the healthcare system, and you can focus on policy.
And when you think about how complicated that is and how the end result of advanced care planning is this like interweaving mismatch between all of those different players.
And then when we think about the prior data has usually been, including my studies, focusing on one of these pillars.
To see what the outcomes are.
And you know, Ryan and I initially, um talk about this, Ryan, our the initial title of our paper was, Are we asking too much of advanced care planning?
Where we have this thing that we've created, which we don't even know how we're gonna define it.
And people define it all different ways and it's really sort of a tool that could be used in multiple other things and that we expect this tool
To fix all of the ills and problems of end of life care.
And then when it doesn't, we say, Well, I guess it didn't work.
So I think Ryan and I were trying to tease out in this study, and we'll talk a little bit more, about what basically is advanced care planning and how people are defining it, which we just talked about, but also when we think about the outcomes.
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