Sophie Smith

We got very used to just sitting by their beds and we would, you know, talk to them.

And at this stage, their eyes hadn't opened.

So they were just in their humidity crib.

But yeah, we had a really good week.

And then things went awry for Evan.

Was it his lungs?

No, it wasn't his lungs, it was his brain.

So, well, he first of all, at seven days old, he just became really ill.

And the doctors were very worried.

And actually, it was the day that I was let home from hospital.

After seven days, they said to me, okay, time for you to go home.

And I didn't want to go.

And luckily, we were lucky, we lived near the hospital, but we went home.

And that night, in the middle of the night, the phone rang and they said, come back quick.

And so we went in and Evan was really ill.

And it turned out that he had a very severe brain hemorrhage, which is very common in premature babies.

And so at 10 days old, they told us that his brain hemorrhage was so severe that

their advice was that we should turn off his life support and let him go.

And so that was the first time that I held Evan, was when we took him out of his team media crib, and I held him as he passed away.

Yeah.