Tasha (Soraya's mother)
speaker
575 appearances
2 recordings
1 series
first heard Jun 2026
last heard 1 Jul
Tasha (Soraya's mother)’s voice in public audio — every appearance, attributed to the second.
Trend
recordings per month · last 12 monthsRecordings per month over the last 12 months — 2 in all, peaking in Jul 2026 with 1.
Appearances
There's actual treatment available in the sense that the science does exist.
The funding is not there.
And so they all have the ability for potential gene therapy.
And the science and the scientists are there, but the funding has not been covered yet.
And so that is where they need help.
Wow.
And how much do you think would like help get this?
At minimum, $3 million.
I mean, we're talking millions of dollars.
And that is just due to how much goes into thoughtfully doing research on humans.
You want to make sure that this can be done safely.
And in order to do that, we need funding so the research can be done.
Yeah.
Yes.
Currently there is a researcher at University of Washington and we have her website.
It could save lives.
And it would be the foundation to save so many people, not only like Soraya, but this really sets things off for anyone with a rare disease.
This is not just about one gene.
This is about the possibilities that are there for so many rare kids.
Awesome.
Showing 321–340 of 575 · page 17 of 29
← Previous
Next →