Rheum Champions Tell All, with My Spoonie Sisters

Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling." Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.*This episode was originally recorded as part of the My Spoonie Sisters podcast. Episode at a glance:Getting Involved: Patient advocacy and research as “Rheum Champions” with the Rheumatology Research FoundationResearch Highlights: New findings on POTS and Covid, the role of sleep and fatigue management in chronic illness, Advances in lupus treatment, Benefits of positive activity scheduling for stress and activity managementPersonal Insights: Real-life strategies for improving sleep hygiene, Challenging the idea of what’s considered “normal,” The power of sensitive and inclusive languageCommunity & Support: The importance of finding and connecting with supportive communities, Encouragement for those looking to get involved in advocacyMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

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