This interview is brought to you in partnership with Eisai and is part of the Journey to Diagnosis series.Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/Ben Draper was just 47 when he was diagnosed with early-onset Alzheimer’s. In the years leading up to that diagnosis, he and his wife, Robin, began noticing changes. Ben struggled with everyday tasks that used to come easily, such as sending text messages, using a phone or computer, managing time, and doing simple math. While running his construction business, he realized he could no longer read a tape measure. Even following GPS while driving became difficult.Early testing revealed significant cognitive impairment, followed by an extensive medical workup that included an MRI and a spinal tap. The results showed amyloid plaque, and, with a strong family history of Alzheimer’s, Ben later learned he also carries a genetic link to the disease.Today, Ben and Robin are focused on living each day to the fullest. They document their experiences on TikTok (@draperfamilylife) to help others feel less alone and to raise awareness about early-onset Alzheimer’s.In this conversation with Being Patient’s founder Deborah Kan, Ben and Robin describe the emotional whiplash of fearing a rapidly fatal diagnosis like Creutzfeldt-Jakob disease before receiving clarity, and the unexpected relief that can come with finally having the early-onset Alzheimer’s diagnosis. They talk candidly about Ben's symptoms and how financial and care gaps can leave younger families scrambling for disability coverage, insurance, and support. Above all, they return to a guiding mindset, focus on what Ben can still do, lean on community, and make each day count.----Visit Being Patient for more Alzheimer’s and brain health coverage: https://www.beingpatient.com/Follow Being PatientTwitter: https://twitter.com/Being_PatientInstagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet covering brain health, cognitive science, and neurodegenerative diseases. Our Live Talk series features interviews with experts and people living with dementia.Watch more Live Talks: https://beingpatient.com/live-talks/

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“What did the council decide on item 42?” — answered with the speaker and the moment.

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