The importance of friendship and community in caregiving and loss (and finding chosen family), with Jacquelyn Shapiro (Episode 143)

A very common sentiment we hear from caregivers is the loneliness and isolation felt as a result of misunderstandings between other family members or friends, the feeling that others don’t understand the caregiving perspective and feeling as though there is no one to share the day-to-day highs and lows with. In today’s episode, Stephanie invites her friend and fellow FTD daughter, Jacquelyn Shapiro, onto the podcast to discuss how their friendship formed, their thoughts on friendship in caregiving and how to find community at a time when you feel the most lonely.About Jacquelyn:Jackie first learned about AFTD in October 2020, when her mother was diagnosed with bvFTD and learned that the progranulin (GRN) mutation was the cause, despite there being no family history of dementia. Since then, Jackie has used the Instagram @ftdalovestory as a platform to educate others about FTD, advocate for caregivers and families, and discuss genetics and genetic testing. She has been featured in a caregiving documentary, interviews, and several podcasts, and works with researchers and pharmaceutical companies to educate their staff on FTD and how to work with families dealing with dementia. She is currently the New York Ambassador for the AFTD, and a CureGRN Champion.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

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