In this episode of DEARG, Kathleen King is joined by Heather Guidone, a board-certified patient advocate and program director of the Center for Endometriosis Care. Heather shares her personal journey with endometriosis, adenomyosis, and advocacy, emphasizing the importance of advocacy based on lived experiences. Kathleen and Heather reflect on the evolution of endometriosis advocacy and the challenges of ensuring accurate information in today's digital age. They emphasize the significance of fact-checking, seeking evidence-based resources, and collaborating with trusted sources. The conversation dives deep into the pivotal role of patients in research, highlighting the need for genuine inclusion and representation. Both hosts underscore the transformative potential that diverse perspectives bring to the understanding and treatment of endometriosis and adenomyosis. Join Kathleen and Heather as they navigate the complexities of these conditions, sharing insights, experiences, and invaluable advice for advocates, patients, and supporters alike. DEARG is a podcast dedicated to providing essential information about endometriosis and adenomyosis. Hosted by Kathleen King, an advocate based in Ireland with a profound interest in these conditions, DEARG features expert guests and advocates like Heather Guidone, sharing their knowledge and experiences. Center for Endometriosis Care https://centerforendo.com/ Heather Guidone, BCPA is the CEC’s Surgical Program Director. A nationally Board-certified healthcare Advocate, she is proud to have joined Dr Sinervo at his Center more than 18 years ago. She manages the CEC’s comprehensive multidisciplinary care program, facilitates the Center’s clinical research, education, awareness, and legislative/policy endeavors and coordinates the CEC’s MIGS/Endometriosis Surgical Fellowship Program. She has focused on 'bench to beltway to bedside' efforts in endometriosis for over 30 years, advancing various clinical, research, legislative/policy, education, and inclusivity initiatives related to the disease. She is also someone who has personally struggled with advanced endometriosis and pelvic pain gynepathologies as well, and her lived experiences bring unique perspectives to her professional works and fuel her passion to effect change on the way endometriosis is researched, treated, and publicly perceived. Heather has received various awards for her work and continues to volunteer her time to several collaborative endeavors, including as a Reviewer for various federal Medical Research Grant Programs. She has also contributed to countless books and publications on endometriosis and related health concerns over the past three decades. She looks forward to helping guide your CEC journey with compassionate expertise and understanding. Additional Reading: The Womb Wanders Not: Enhancing Endometriosis Education in a Culture of Menstrual Misinformation https://www.ncbi.nlm.nih.gov/books/NBK565622/

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