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Terminally online: Finding humor and TikTok fame in an ALS diagnosis

07 Mar 2025

Description

"Should I be joking at a time like this?" That's the question then 33-year-old Brooke Eby asked herself when she uploaded her first piece of TikTok comedy in 2022, about being diagnosed with a terminal illness. Brooke's since built an audience of hundreds of thousands of people who are rooting for, and laughing with, her. Sometimes it gets weird. Brooke talks to Ben and Amory about how facing death changed her relationship with social media and online community. Show notes: Brooke Eby's TikTok, Instagram, and YouTube ALSTogether When Your Terminal Illness Makes You a TikTok Star (The New York Times) This episode was written and produced by Grace Tatter. It was co-hosted by Amory Sivertson and Ben Brock Johnson. Mix and sound design by Emily Jankowski.

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