Episode 85: Reddit's Darkest Confessions

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Malevolent Mischief: True Stories of Horror 21 min 1 speaker 7 chapters transcribed 2 months ago
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What is the opening setup and what shocking confessions will we hear?

Unknown 0:17
I am married to an amazing man, we have a life that I love, we have a beautiful home, we travel, we have great relationships with friends and family, and we both built careers that we're proud of.

How did one woman’s medical mystery lead to a devastating ALS diagnosis?

Unknown 0:30
About 18 months back, I started to develop a limp on my left side. I decided that this had to be age-related, so I committed to adding strength training to my workouts. But I continued to get weaker, I lost the ability to walk in heels, and I started struggling to make it upstairs. My initial lab work was unremarkable, but x-rays and an MRI revealed spinal nerve compression. A neurologist confirmed the diagnosis with EMGs and nerve conduction studies. Even though I had no back pain, every physician I saw diagnosed me with the same condition, spinal nerve compression. I underwent a posterior lumbar fusion a year ago, but my symptoms only worsened in the first few months after the surgery. My neurosurgeon ordered more imaging, which was inconclusive.
Unknown 1:16
I went back to the neurologist for more nerve studies, and he diagnosed me with worsening spinal nerve compression. I had had several falls and became completely walker dependent. I underwent an anterior and posterior lumbar fusion to revise the first surgery. and the operating physician note says that the hardware hadn't properly set. Four days later, additional imaging revealed some small bone chips near my spinal nerve roots. So, I had a third surgery to revise the same fusion again. Now, I never missed a physical therapy appointment, and I pushed myself to walk with my walker as much as I possibly could. I was determined to regain the life that I loved. Despite all of my efforts, I just kept getting weaker and weaker.
Unknown 2:02
A new neurologist saw me back in February, They did a third set of nerve conduction studies, and then diagnosed me with ALS. That news was crushing. Since then, my decline seems to be accelerating, and my life expectancy is short. I'm completely dependent on others for everything from meals to bathing. Most of the time, the burden falls to my husband. Throughout our entire marriage, he's always been rather squeamish about sharing bathrooms. He firmly believes that husbands and wives should have their own spaces for privacy. But he now helps me to the bathroom, cleans up any accidents I may have, and helps me dress. I used to do almost all of the cooking in our house, but he stepped up and makes sure that we still have home-cooked meals.
Unknown 2:51
He continues to thrive at work, then he comes home and manages our house. He takes me places in my wheelchair even when he's exhausted. He looks for every opportunity to fill our days with joy. I know that he must be running on fumes, but he does all of this without any lick of complaining. I've never felt so loved. I mean, I knew that he was a great man. I knew that he was strong and loving. Now, I know that he's a far better husband than I deserve. He's not perfect. I'm not saying that. He doesn't like to talk about his feelings. Doesn't like to talk about other people's feelings.

How does the narrator describe her husband’s caregiving after her ALS diagnosis?

Unknown 3:27
His taste in music is questionable. He thinks camping is fun. He won't buy new clothes for himself, so he needs someone to keep his wardrobe up to date. I want him to have the beautiful and adventure-filled life that we had planned, even if I don't get to share it with him. That the universe rewards him with a beautiful, kind, and fun-loving woman. One who will care for him the same way that he's cared for me. I truly believe that he deserves nothing less. I share all of this as I'm looking down at the dinner that he's prepared for me tonight. Tortellini with sliced Italian sausage and a marinara sauce, along with a Caesar salad on the side. Even though I'm terrified on the inside, I just can't stop smiling right now.
Unknown 4:12
I don't know when you may read or hear this story, whether I'll still be here or not, but the thought will absolutely be persistent. I hope my husband finds the love that he deserves when I'm no longer by his side. And at this advanced stage of the game that we're in, that's about all I can do now.

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