Barry Baines
speaker
1,145 appearances
30 recordings
1 series
first heard Feb 2024
last heard 3 Apr
Barry Baines’s voice in public audio — every appearance, attributed to the second.
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recordings per month · last 12 monthsRecordings per month over the last 12 months — 6 in all, peaking in Jan 2026 with 2.
Appearances
Right. And, and to be, and to be clear, this is not, you know, This is not meant to be a blame game because the dynamic here, you know, it takes two to tango, right? And when, you know, for most people, as they go through their illness, their goals change over time. Okay. And many people's goals are, I want to live as long as I can. Okay.
And as you know, in medicine, we continue to have treatments that may or may not help that goal. And so it's one of these things where everybody is hoping... For, you know, for the best here. And so it's easy. Again, this idea of six months or less, that's a hard thing to, you know, to get your head around. And then you also have patients and their families and you have families that are not sick.
Have you ever heard of families that are not on the same page on things? Never. I don't know what you're talking about. So then there's all these, these, all these family dynamics, you know, as well that, that happens. So it's, it's very, it's very complicated.
And again, one of the things that sort of helps is the idea of reframing this, even though yes, six months or less, but if we think in terms of a,
larger time frame we know that it's going to be less than that most likely okay because we tend to overestimate prognosis so if we you know so that to me is the key that's sort of the the key and that was why i wanted you to answer that question okay i i hope i answered it no no you did you did you did yeah but you answered it in a sense of this that it's a struggle for everybody
No, I think it's, I think it's great. And the other thing to realize that a lot of people probably don't don't, they don't know this. When I was just doing my regular family practice stuff, not my, you know, my family practice stuff, with seeing patients and things like that. I, you know, used to do what I call womb to tomb, you know? Okay. I had very few patients in the course of a year who died.
Do you know what I mean? I had maybe a, maybe a handful. And so if you just run into that every few months or so, unlike treating diabetes or high blood pressure or strep throat, where you see a lot of that, you know the drill, you know what to do.
With end-of-life care, and it doesn't, for again, the general primary care physician, an internist, a family physician, as opposed to, let's say, geriatricians or oncologists, cancer specialists, you know, even cardiologists who tend to see the more difficult heart failure things.
If you don't see lots of patients, you don't, you don't learn the drill for how to have, you know, how do you have those conversations, which as you can imagine are very sensitive conversations. They're very difficult conversations to have.
That's another great question. That's why I love being on Health Chatter. Our conversations are just so good. Actually, everybody is aware of cultural competency. Or at least they should be. The hospice team is very sensitive to the cultures that they're working in, which are a diverse set of cultures.
And you could be part, as we all know, you could be part of a culture, but you still need to know individually, what does that mean to that person? Okay. You can't say everybody, you know, who's part of this culture acts in this way and has these wishes. No, it's not the case. So it's, it's recognizing and asking the question directly. So how do you, you know, what is,
You know, how do you and your family approach end of life? And then when they tell you then and that that informs the treatment plan moving forward, because then you know. So it's being being humble enough to know that it's OK to not know.
And be culturally sensitive and ask. I don't know. So I would ask Clarence, what has been your experience with people in your family who have passed? How did that go? And how do you see this for yourself? And so you ask, you listen. And that's the other thing is that hospice care in general doesn't have, we don't have our agenda yet. Like our agenda is sort of, what are your goals?
And how can we help you to meet your goals? That might not be what I would want to do, okay? But it's not about me, right? It's about you.
I agree 100%. We are all unique. We are all unique.
your attending physician, your doctor. or the nursing staff, they may have had the conversation with you a little bit like, Stan, there really is not anything more that we can do at this point to slow down the way your disease is going. And realistically, you have a few months left to live. Let me tell you about OK, the doctor will say, let me tell you that we have this other
you know, kind of care called hospice care that focuses on keeping you comfortable and improving the quality of your life as best as can be done in the remaining time you have. Is that something you'd be interested in? And you would say, of course, you know, yes, I think I've been on this road.
I've been back in and out of the hospital, you know, every, every month for the past, you know, five months, whatever. And they say, great, we're going to have, we'll ask a hospice program, you know, person to come in. Oftentimes hospitals have palliative care teams. Okay. In hospital services who can come in, they're not hospice. Right. Palliative care, but they can come in. They're well-trained.
They will have those conversations with you. And together you'd say, you know, I think I'd like to go with hospice. Got it.
Yes, yes. These are family conversations. And then while you're still in the hospital, either they can get hospice to come in to see you, but hospice really can't enroll you until you're home. Okay, so it might be, Stan, we're going to send you home tomorrow morning, and tomorrow afternoon, there's a hospice program that's going to come out and talk with you.
Showing 1121–1140 of 1,145 · page 57 of 58
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