Derek Jones

just less vocal just it's hard to even explain it's as a parent when you see your kid like and you something's off you can tell I knew something was off in it but it was like and that's where by saying like that like it was my kid but it wasn't like it was off like she wasn't her normal self and it just kept getting further and further from her normal self

And so she was going back and forth to the hospital and the ER.

She was having these symptoms.

They couldn't figure it out, but they wanted her to start.

She would send, you know, she'd be like, hey, she's having seizures.

I'm going to take her to ER.

I need you to come home and stay with the kids.

So I'd leave work, come home and first couple of times I didn't know.

So they started telling her, hey, when you witness these episodes, please record it and send it to us or bring it into her next doctor's appointment so we can view it.

So they had done a, I want to say, I can't remember if it was a 24 or 48 hour at the hospital EEG.

She told me they caught a few little ones, but it wasn't enough for them to find, you know, go off of anything.

And so they, you know, they had moved us over to neurology at Cook's to start seeing them so that, you know, you could, you see the doctor once or twice while you're in the hospital, but they wanted, you know, where they could get on a more personable level.

The doctor said, hey, I want you to video if you see anything.

So time, you know, a month or two goes on.

She's getting worse.

One day I get a video from her and she'd send it to my mom, too, of this episode.

And growing up, you know, never being fully around somebody that had had seizures other than her older sister.

But I'd only witnessed a very glimpse of that also of the older one.

So when I see it on the video, my assumption is, hey, she's shaking and stuff.

I think that's a seizure.