Derek Jones
speaker
760 appearances
3 recordings
1 series
first heard Dec 2024
last heard 26 Dec
Derek Jones’s voice in public audio — every appearance, attributed to the second.
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recordings per month · last 12 monthsRecordings per month over the last 12 months — 1 in all, peaking in Dec 2025 with 1.
Appearances
And so they, you know, they had moved us over to neurology at Cook's to start seeing them so that, you know, you could see the doctor once or twice while you're in the hospital, but they wanted, you know, where they could get on a more personable level. The doctor said, hey, I want you to video if you see anything. So time, you know, a month or two goes on. She's getting worse.
One day I get a video from her and she'd send it to my mom, too, of this episode. And growing up, you know, never being fully around somebody that had had seizures other than her older sister. But I'd only witnessed a very glimpse of that also of the older one. So when I see it on the video, my assumption is, hey, she's shaking and stuff. I think that's a seizure.
I wholeheartedly, you know, when your daughter's sitting there like this, you know, I'm thinking she's having a seizure. To me, that's what I figured it looked like.
Yeah, it's not, hey, one set standard, you know.
Something. She was laying on the couch shaking. You know, she was getting to the point where she was having these episodes of peeing on herself more. It was, like I said, her health was declining. And you get more and more concerned as a parent. You're like... Something's got to be done. You know, we need to figure something out. If it's not this, it's got to be something.
And a week or two after that video, she ends up having more seizures. She's like, hey, I called the emergency number. They want me to take her in when you get home because she's had a couple today and she's real lethargic right now. okay, I'm rushing home. She takes her up there. They end up admitting her for a day or two to observator. Then I was like, did you show them the videos?
She's like, yeah, they see it. They said those are small ones, but she never had one in there. They ended up, they're like, hey, we're going to send her home and do a 72-hour EEG at home where she's more relaxed, more comfortable, where if
you know where they've been happening so maybe we can catch one there so here she comes home she has to keep this backpack on her for three days has her you know all the stuff on her head all gauzed up and they'd even went in and done a mri i think Was it an MRI of her brain? They had to put her to sleep and do two tests to her while she was asleep.
They put her to sleep and everything, which that was hard to witness the first time because she started shaking a little bit, you know, when she went to sleep. And so 72 hours, they go back in, take it all out or take it all off. Next day, they say it's going to take like two days to get the full readings of everything for the doctor to look at it. She calls me when they get it.
She said they saw a few little ones on there because we had a button every time we thought we'd see one, we had to hit it. You know, we're supposed to hit it. And she was supposed to, I believe, log it all. Also, every time she thought she saw one in that 72 hours. And supposedly she was doing all that on her phone.
Jessica, yes.
So I'm thinking, okay, now they know there's a few. She's like, hey, they said they're gonna call her and they call in this medicine to put her on to start. They wanna start on this low dose of the, I can't even remember what it was called. And a week or two later, This whole time, right before she got caught in June of 2022, April, May, I'm really on her.
I'm like, hey, we need to get with these doctors. I'm losing. I felt like I was losing my daughter. I felt like if this kept on, she was going to die. That's how much she was declining. She was pretty much a vegetable at home most of the time. She wanted to sleep all the time and just have an accident. Like we were going backwards, but she just didn't really talk.
And she just lay on the couch, you know, and she was just out of it. And I'm like,
Yeah, she was four. And so I was like, you know, this is, I'm losing my daughter. Like they got to figure, I was starting to get mad. I'm like, they gotta figure something out. And so she takes her in June for more seizures and they admit her.
She tells me, you know, that they're observing her and they move her up to this room that where they could have cameras on or watching her, you know, see how she reacts and stuff like that. They're running tests. I would get calls saying, hey, she's doing better. You know, she's starting to improve.
Then I'd get calls saying, hey, she went to, you know, she went to the bathroom and she came back in here. And now it's like been an hour or two and she's starting to go down. And I'm like, so she's up and down. Like, what are they thinking? She's like, they're wanting to run more tests. They just came and took more blood.
This is Jessica's reporting this to me from the hospital because I went up there once. Because it was hard for me to go with all the kids. Yeah. I wasn't going to take them into that setting. You know, you could only have like two people in there at once. Anyways, she was in there for four days.
I get a call from her or a text from her saying, hey, somebody from CPS is about to be calling you or going to be getting in contact with you. And I was like, whoa, whoa, whoa, whoa, whoa. What are you talking about? She's like, they'll explain everything. I'm like, what's going on? Like, that's serious. How do I go from my daughter's up and down?
You're in here in the hospital with her to now see like what I need. I need some background. She said I gave the youngest one too much medicine. And I'm like, what do you mean you gave her too much medicine? I'm going back and forth with a text because she won't answer her phone. So I get a call from CPS and they're like, hello, is this Mr. Jones? I said, yes, it is.
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