Dr. Aimee (Amy) Nefcy

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802 appearances 1 recordings 1 series first heard Dec 2025 last heard 20 Dec

Dr. Aimee (Amy) Nefcy’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months

Recordings per month over the last 12 months — 1 in all, peaking in Dec 2025 with 1.

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The Neurotransmitters: Clinical Neurology Education · Beyond Tired: Understanding ME/CFS · 20 Dec 2025 podcast

So so we started flugacortisone and that has been amazing.

My orthostasis is basically gone.

My heart rate monitor, it shows that my heart rates are way down with everything I do, even sleeping.

And I don't get dizzy when I stand up anymore.

I'm still having a lot of physical tiredness and weakness in my muscles.

And if I don't get enough sleep, I just feel, again, that feeling of being hit by a truck.

I achy all over.

you know, just can't get comfortable feeling flu-like.

And those are all typical symptoms of PEM.

So I've become convinced that, you know, I was right at the beginning that my sleep is intimately tied up in what's going on.

And doing research, I found out that ME-CFS is really also defined by fragmented sleep.

And we don't know why.

It's not something that people are researching.

And even my sleep neurologist who works at the university, and this is what she does, she's paid more attention to the mild OSA that I have than the fragmented sleep.

And she doesn't want to look at the data that I have from my aura ring that I wear.

It has been instrumental in, for me, understanding my sleep better.

And it might not be reliable as a polysomnogram, but it does, you know, do pretty good estimating your sleep level just based on your heart rate, I think.

And I know because I wore it during both of my sleep studies.

And you know what?

It correlated really quite well to the sleep state.

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