Dr. Bex

works with patients who have both connective tissue disorders or things like Ehlers-Danlos and then potentially also these neurologic issues. And so that's why now he's the head of what is called the Chiari EDS Center. So working with both of those things in conjunction. But I think the start of our story and what we're going to focus on is more his work at the Chiari Institute with Dr. Millerat.

So a Chiari malformation is a very, I mean, it's a very well-known entity in medicine. Just to be clear, it is the idea of your cerebellum, which is your posterior brain. It helps control all of your movements. And it sits kind of right here at the back of your skull. So the idea is that it can actually slip or basically start to what we call herniate through the hole at the bottom of our skull.

So a Chiari malformation is a very, I mean, it's a very well-known entity in medicine. Just to be clear, it is the idea of your cerebellum, which is your posterior brain. It helps control all of your movements. And it sits kind of right here at the back of your skull. So the idea is that it can actually slip or basically start to what we call herniate through the hole at the bottom of our skull.

So a Chiari malformation is a very, I mean, it's a very well-known entity in medicine. Just to be clear, it is the idea of your cerebellum, which is your posterior brain. It helps control all of your movements. And it sits kind of right here at the back of your skull. So the idea is that it can actually slip or basically start to what we call herniate through the hole at the bottom of our skull.

So the idea is your brain stays within your skull and then comes your spinal cord. The idea of a Chiari malformation being affiliated with connective tissue disorder, Ehlers-Danlos, If you kind of think about it in your head, you can kind of come up with how that could make sense because both involve some kind of a weakness or structural weakness.

So the idea is your brain stays within your skull and then comes your spinal cord. The idea of a Chiari malformation being affiliated with connective tissue disorder, Ehlers-Danlos, If you kind of think about it in your head, you can kind of come up with how that could make sense because both involve some kind of a weakness or structural weakness.

So the idea is your brain stays within your skull and then comes your spinal cord. The idea of a Chiari malformation being affiliated with connective tissue disorder, Ehlers-Danlos, If you kind of think about it in your head, you can kind of come up with how that could make sense because both involve some kind of a weakness or structural weakness.

So I think the concept came from if there's ligament laxity in that area and all these other things that go along with Ehlers-Danlos, is there a chance that they'd be at higher risk of that kind of slipping happening? Or is it one of those things that... It's a correlation, but is it really a causation?

So I think the concept came from if there's ligament laxity in that area and all these other things that go along with Ehlers-Danlos, is there a chance that they'd be at higher risk of that kind of slipping happening? Or is it one of those things that... It's a correlation, but is it really a causation?

So I think the concept came from if there's ligament laxity in that area and all these other things that go along with Ehlers-Danlos, is there a chance that they'd be at higher risk of that kind of slipping happening? Or is it one of those things that... It's a correlation, but is it really a causation?

So that's kind of two of the words we use in medicine where correlation is the two seem to have some interplay with each other. And maybe you do see one a little bit more in the other. But true causation that this child has a Chiari malformation is because they have Ehlers-Danlos is where we're lacking a lot of, you know, information.

So that's kind of two of the words we use in medicine where correlation is the two seem to have some interplay with each other. And maybe you do see one a little bit more in the other. But true causation that this child has a Chiari malformation is because they have Ehlers-Danlos is where we're lacking a lot of, you know, information.

So that's kind of two of the words we use in medicine where correlation is the two seem to have some interplay with each other. And maybe you do see one a little bit more in the other. But true causation that this child has a Chiari malformation is because they have Ehlers-Danlos is where we're lacking a lot of, you know, information.

A lot of it is case studies and very small, what we call cohort studies. So very small number of patients. And what we're missing is something called a randomized controlled trial or a large randomized controlled trial. And there are things in medicine that that's difficult to do. And so a lot of it comes down to, you know, there are neurosurgeons who believe in this connection. There are

A lot of it is case studies and very small, what we call cohort studies. So very small number of patients. And what we're missing is something called a randomized controlled trial or a large randomized controlled trial. And there are things in medicine that that's difficult to do. And so a lot of it comes down to, you know, there are neurosurgeons who believe in this connection. There are

A lot of it is case studies and very small, what we call cohort studies. So very small number of patients. And what we're missing is something called a randomized controlled trial or a large randomized controlled trial. And there are things in medicine that that's difficult to do. And so a lot of it comes down to, you know, there are neurosurgeons who believe in this connection. There are

centers that very much focus on this connection but it is still very much case study based if you look up the articles that are out there the ones I could find seem to have at least one of these physicians that pops up in these cases about you know as part as one of the authors so So it does seem to be a smaller circle of neurosurgeons.

centers that very much focus on this connection but it is still very much case study based if you look up the articles that are out there the ones I could find seem to have at least one of these physicians that pops up in these cases about you know as part as one of the authors so So it does seem to be a smaller circle of neurosurgeons.

centers that very much focus on this connection but it is still very much case study based if you look up the articles that are out there the ones I could find seem to have at least one of these physicians that pops up in these cases about you know as part as one of the authors so So it does seem to be a smaller circle of neurosurgeons.

And I wanna make a point that there's something we call consensus. When we like review articles or look back at studies that are done, one of the things we talk about is standard of care or consensus. It's not always that the American Association of Neurosurgeons came out and said, this is the gold standard for this condition.