Dr. Rachel Bishop
speaker
160 appearances
1 recordings
1 series
first heard Jul 2026
last heard 2 Jul
Dr. Rachel Bishop’s voice in public audio — every appearance, attributed to the second.
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recordings per month · last 12 monthsRecordings per month over the last 12 months — 1 in all, peaking in Jul 2026 with 1.
Appearances
In Ireland, probably fewer than 30.
The thing about rare diseases is, too, I would say, families and patients with rare disease, it's kind of a lonely and difficult place to be because nobody has heard of it, and your doctors don't quite know how to treat it until you get well-connected.
So this conference brings together doctors, scientists, and also patients and family members so we can collaborate, we can share research advances, and educate and connect these people.
You know, what's interesting is by studying rare diseases, we learn a lot about the human body that actually helps us treat common diseases and make advances there too.
So it's not...
just a benefit to the family members and the patients, which is huge, which is why we do the work.
But really, it spills over into science of other medical conditions too.
I would say in the spectrum, it's quite serious.
So this disease affects every organ of the body.
It can lead to kidney failure.
You know, I learned Ireland has a soft
opt out, a donation policy.
This is brilliant, very exciting, because these patients all need kidney transplants eventually.
And you know, there's a long waiting list for the kidney transplant.
So I think that's really wonderful.
Ireland has that.
But it affects every organ of the body.
A patient can be taking 30, 60 pills a day, multiple medications throughout the day.
So it's very difficult disease to have and important that we can bring these
families together so they can learn how to cope, manage and help each other.
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