Fiona Cauley
👤 SpeakerAppearances Over Time
Podcast Appearances
It's like 45 minutes from New York.
And you think walking in snow is hard?
The thing that – the reason I'm like emotionally okay now, I do have a lot of faith that medicine will catch up.
Like the one I did out there was a frataxin replacement therapy.
um so they're trying to figure out how to get it back in your body and then at that point it would be me relearning how to walk they do believe they'll cure me in my like but then the next 10 5 or 10 years you're not gonna like me as much when i can walk whoa that's gonna be crazy so was there a time when you felt like there would be no cure
Well, when I got diagnosed, I was like, all right, now we know.
And they were like, there's nothing.
And they were like, well, your life expectancy is 40.
And I was like, fuck.