Jesy Nelson

And I'd be like, and I remember saying to Zion, I actually think my mum's right.

This isn't normal.

I said, we need to go see someone because something's not right.

So we went to the pediatrician and he, they do all these like tests on them.

It's horrible.

They like, they're always like, well, they are with babies that have SMA.

They're like rag dolls.

They can't, they're, they're so like, even now when I hold them, people still think they're like newborn babies because I'm, you know, the way that I have to hold them because I can't hold themselves up.

They're like newborn babies.

So they're very floppy.

They can't do anything.

Um, so he's like, he's like tipping them upside down and he's doing all this stuff on them and you're like, it's very overwhelming.

And he said, um, okay.

Uh, and I just, you know, you just know, you just, you just, I don't know if it's a mother's instinct or it's just an instinct.

I just knew from the like,

way he was speaking to me that something serious was going to happen and he said um okay they're showing signs of hypertonia I was like what's that and he said well before I get into that I want to get them for some blood tests and I want to do um a brain scan on them I was like a brain scan he said yeah one of their heads looks quite big and I'm worried she's got fluid on her brain and I was like

okay.

And he was like, so, so we need to do that straight away.

I want to do that straight away.

I said, okay, how long is that going to take?