Jovan Grogan
speaker
24,449 appearances
70 recordings
2 series
first heard Sep 2023
last heard 6d ago
Jovan Grogan’s voice in public audio — every appearance, attributed to the second.
Trend
recordings per month · last 12 monthsRecordings per month over the last 12 months — 23 in all, peaking in Dec 2025 with 5.
Appearances
That's who I'm representing today.
I wanna make that very clear.
I am a resident of Santa Clara and the Myositis Association mission is to improve the lives of people affected by myositis like myself
fund innovative research, and increase myositis awareness and advocacy, which is why I'm here today.
Myositis is a disease that makes your immune system attack your muscles, as I said.
It causes chronic inflammation.
I haven't talked about this publicly.
There are several different types of myositis and in order to kind of burn this into your souls because that is how we remember things, I'm gonna tell you my story.
I have the version that is called antisynthetase and it is so rare within the myositis family that most of the medical professionals that I work with when I get my infusions haven't heard of it.
I was at pulmonary rehab this morning, and the nurse again admitted to me, it was a different nurse, by the way, I haven't heard of your disease.
Antisynthetase syndrome is usually diagnosed at about age 50, and I was 50 years old when I was diagnosed.
About 75% of the people diagnosed with antisynthetase syndrome are also diagnosed with interstitial lung disease, which I also have.
Fortunately for me, what I didn't get with my antisynthetase syndrome, sorry, that's a mouthful even for me, is a delay in diagnosis.
My diagnosis took five weeks.
Most people wait one to two years.
Through the stellar,
services at Kaiser Santa Clara and their integrated systems, I went from first overt symptom to diagnosis in five weeks.
I actually had a normal blood test on January 21st, 2025, when I felt weird.
That's the only thing I could explain to my doctor, I felt weird.
By January 26th, I had a rash and a fever.
Showing 1521–1540 of 24,449 · page 77 of 1223
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