Jovan Grogan
speaker
24,449 appearances
70 recordings
2 series
first heard Sep 2023
last heard 6d ago
Jovan Grogan’s voice in public audio — every appearance, attributed to the second.
Trend
recordings per month · last 12 monthsRecordings per month over the last 12 months — 23 in all, peaking in Dec 2025 with 5.
Appearances
That rash read to cover my whole body except for my face and feet.
I couldn't move my arms and legs.
And by January 27th, I had abnormal blood tests.
It was that fast, six days.
which led to more blood tests and CT scans and ultrasounds and more blood tests and final diagnosis of this very rare condition of myositis antisynthetase syndrome on February 28th, followed a week later with a diagnosis of interstitial lung disease.
While myositis does not generally cause a...
change in lifespan, interstitial lung disease can.
And luckily for me, because my myositis was caught so quickly and Kaiser has been so responsive to my symptoms, I'm hoping to have a normal lifespan.
The chances are because of my interstitial lung disease is I will not.
In my first year, I have been hospitalized for a total of 14 days due to acute hypoxic respiratory failure.
I have had to be on oxygen a total of three months, which I was able to get off.
So this is a very serious condition.
And as I said, the reason why I'm here is because it is a rare condition and we need funding.
And the way to get funding is to one, start with getting awareness.
And so that is why our little group through the Myositis Association is trying all over the United States to get people to proclaim May as Myositis Awareness Month so that people will become aware of this disease because there are people out there suffering who may not be diagnosed.
who may not know why their muscles are aching and think it is maybe just they're sore.
It's more than that.
And so I thank you for accepting my plea to proclaim May as Myositis Awareness Month and helping us get a little more awareness to this disease and hopefully getting us a little closer to more funding and a cure.
Thank you.
Thank you, Vicki.
Showing 1541–1560 of 24,449 · page 78 of 1223
← Previous
Next →