Marie Bakitas
speaker
466 appearances
2 recordings
1 series
first heard Mar 2020
last heard Feb 2025
Marie Bakitas’s voice in public audio — every appearance, attributed to the second.
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Appearances
Dr. Renee Elk ran that.
I was a consultant.
And the community was in Beaufort, South Carolina, which has a mix of people who have had experiences with slavery, with deeply held religious beliefs, and both black and white cultures, and very rural.
So there was a smattering of people who did the original focus groups, and it was fairly homogenous.
I mean, there were differences.
Actually, the black individuals wanted to have a separate one from the white individuals, and so we took that into account in the tailoring of our consultation.
And so it was really the patients, the caregivers, the family members were the ones who were sort of the closest in observing.
Later on, of course, we added health professionals to give us more information, community leaders, and definitely faith community leaders.
So the intervention was, it took us about a year to incorporate and then get feedback on the aspects of palliative care consultation that needed to be sort of tweaked.
So I'll give you a very easy example.
We were told that patients wanted to be treated with respect, to be called Mr. or Mrs., unless you told the clinician something different.
They didn't want you to use jargon.
They wanted you to be respectful of their cultural beliefs and their faith beliefs that were driving their health and illness.
And so there were things that we incorporated into the consultation that then the remote doctors were doing the video consultation.
They went through an immersion training over a couple of days to really learn about how people wanted to be addressed with palliative care.
And so those I think were kind of some of the main things.
right?
So the rest of it was, so the physicians learned how to do this.
And then because they were doing it remotely, you know, through video consultations.
So they were sitting in an office or home somewhere?
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