Molly Burke

speaker

1,048 appearances 2 recordings 2 series first heard Oct 2025 last heard 21 Dec

Molly Burke’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months

Recordings per month over the last 12 months — 2 in all, peaking in Dec 2025 with 1.

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The Checkup with Doctor Mike · She Doesn't Want To Cure Her Blindness | Molly Burke · 12 Oct 2025 podcast

Same kind of stuff that I now post on YouTube and TikTok, but on TikTok.

the live stages to my own age group.

Like I was speaking peer to peer.

I actually went on a reduced school schedule.

So I only went to high school two and a half days a week.

And the other two and a half days I would be touring speaking.

And it was empowering feeling like I am a part of the solution.

I am not a part of the problem.

I'm not a victim to the problem.

I'm being a part of changing it.

And that was really empowering for me.

So with RP, the two symptoms that are most, that are common across all forms is night blindness and tunnel vision.

So I've been fully night blind from birth and then the tunnel vision, you slowly lose your peripheral.

So it's like goes from having full degree of vision to looking through a toilet paper roll, then a straw, then a pinhole, and it just closes up.

And then every other symptom,

diversifies across the spectrum so the way that my geneticist explained my disease to me was that saying the word retinitis pigmentosa is like saying the word cancer it's just a general disease name but what kind of cancer will determine a lot

And so what kind of gene mutation you have determines a lot.

I believe at this point there's over 100 known genes that cause RP.

So depending on what gene type you have will predict your vision loss.

I got my gene diagnosis two years after I went blind.

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