Molly Burke

speaker

1,048 appearances 2 recordings 2 series first heard Oct 2025 last heard 21 Dec

Molly Burke’s voice in public audio — every appearance, attributed to the second.

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Recordings per month over the last 12 months — 2 in all, peaking in Dec 2025 with 1.

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The Checkup with Doctor Mike · She Doesn't Want To Cure Her Blindness | Molly Burke · 12 Oct 2025 podcast

So originally it was suggested that I would lose the majority of my vision in my 30s or 40s.

Do we want him to go out?

No, why?

We can send him out if he's being too much of a ham.

Okay, kush, my love.

He might need water, actually.

That might be it.

Yeah.

Thank you.

So it causes, so yeah, those are the two symptoms.

So at 16, we finally got the genetic diagnosis.

My blood was sent all over the world.

It was finally diagnosed by Columbia and it's TULIP1, which is one of the rarest forms of RP.

And it is known to cause significant vision loss at a much younger age.

So you lose the vision faster and younger, which made sense.

We then understood why I had lost my vision so young and so fast.

And in my case, it took place over about six to eight months.

Now, throughout my childhood, from the time of diagnosis, I was going in for regular checkups to an ophthalmologist at SickKids Hospital who would run tests every six to 12 months to determine the trajectory of my vision loss.

And it would plateau and then we'd have a dip, it would plateau and then we'd have a dip.

But it was over the course of about six to eight months of my grade eight year, so I was 14, where it was a very steady, fast decline.

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