Rebecca Sudore

speaker
816 appearances 5 recordings 1 series first heard May 2017 last heard Mar 2022

Rebecca Sudore’s voice in public audio — every appearance, attributed to the second.

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I think I'm heartened by the fact that over the last decade or so, the definition of advanced care planning has evolved.
So it's changed from this checkbox to really thinking about ways to prepare people in their decision, you know, their surrogates for medical decision making and communication.
And when I think about advanced care planning, too, it all sort of goes back to like meaning making, like who is this person?
Who are they?
What's important to them and their quality of life?
I don't need a checkbox form.
I don't need to know about CPR, mechanical ventilation.
I want to know who is this person and what does quality of life mean to them?
And to me, that's advanced care planning, whether it happens upstream or whether it happens when somebody is sort of at the end of their life.
And so I think it gets back to like none of us, I think, would say that understanding someone as a person and what's important to them.
isn't important.
I think some of us might disagree about whether these checkbox forms are important or not.
But then that gets back to when we say advanced care planning, what do we mean?
And what I mean when I say advanced care planning is meaning making, is quality of life,
is understanding what's important to that person and what brings meaning and joy to them.
And for some people may include advanced directives if it's right for them and their family members.
So it depends upon what you tease out.
Well, I think there are a couple of things too, because I actually think some of these things about focusing on quality of life and what's important, help people right now decide the medical care that they might want and in the future.
And so I think when, you know, maybe it's best just to call it care planning because I think most of the things that I do in palliative care when I'm talking to patients, you know, even in the hospital is advanced, as you're saying, you could call that advanced care planning or you could call that serious illness communication.
But I think to me, it's all about preparing people so that when the stuff hits the fan,
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