Sharon Brangman
speaker
219 appearances
2 recordings
1 series
first heard Jan 2023
last heard Aug 2023
Sharon Brangman’s voice in public audio — every appearance, attributed to the second.
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Appearances
I mean, the aducanumab study didn't even have enough older people in it.
And I would like to hear from my ethics colleagues what they think is the ethical issues when we are creating drugs that do not include real life people that we take care of or really just cater to white males or people who have access to academic medical centers or people who can understand a complex consent form.
Or people who think research may actually help them and may not be a way to experiment on them and treat them like a guinea pig.
So we have to figure out how we reach out to people who have been excluded.
And from an ethical standpoint, how can we create a whole plethora of drugs in our country or devices like oximeters that totally exclude significant groups of people?
What is the ethics of that, Tim?
Well, there are social determinants of health that could impact somebody's response to a treatment.
And there are biometrics that can change if you're talking about a device, if you are talking about a device where skin tone may be important.
And then there could be changes based on your gender.
You know, we know that women metabolize drugs and alcohol and other things differently than men.
And so that could be true for a lot of medications and devices, too.
And why wouldn't we just have a natural curiosity to make sure that we in science who are supposed to be curious and ask questions, why wouldn't we want to make sure that what we're doing is the best for our patient?
And I find that some people just want a performative approach.
I'm sure Ramona has had this problem, but people come to me and say, Sharon, can you help me get into a Black church?
Because I need to recruit at least 10 Black people for my study.
So they don't even really want to ask a question that might even be important to Black people.
They just want to meet their recruitment goals so they look good on paper.
And what I have found with my project is sometimes researchers aren't even coming up with the right question because they do not even know the people that they're trying to study.
And if you get input from people, you might actually refine your study and come out with a better study.
We have researchers who all look like each other and trained like each other and think like each other coming up with these great questions in their lab.
Showing 161–180 of 219 · page 9 of 11
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