Tasha (Soraya's mother)
speaker
575 appearances
2 recordings
1 series
first heard Jun 2026
last heard 1 Jul
Tasha (Soraya's mother)’s voice in public audio — every appearance, attributed to the second.
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recordings per month · last 12 monthsRecordings per month over the last 12 months — 2 in all, peaking in Jul 2026 with 1.
Appearances
Yeah.
Okay.
Yeah.
So I would say, you know, the first three years of Soraya's life, knowing that something was going on, we were on a roller coaster of looking for what diagnosis does she have and honestly tunnel vision and like just fixating on what does she have so she can fix it.
By age three...
done every testing, realized we were not going to find an answer, came to a place of acceptance, but also a change of how we dreamed of her life, which was going to be a long life with a child with a disability, with a lot of supports, but that would lead a long, healthy life with her 15 subspecialists and her four therapies per week.
And then at age 10, everything changed.
And she mentioned fatigue, which is just such a vague symptom.
And talking to her doctors over telehealth about her fatigue, her pulmonologist recommended getting a CT scan of her lungs.
Like, let's just see what's going on.
And when we went through...
the machine and the tech told her to take a deep breath.
It was the first time that I did not see any chest wall movement with that deep inhale.
And I was like, oh, wow, this is something different.
The pulmonologist was very concerned and felt like this was a huge change and immediately got us in for a sleep study to kind of just see how she's breathing and
at night.
And it was then that we realized that she was indeed hypoventilating, where she was unable to exhale that CO2.
And that was directly not related to lungs, but actual muscle weakness.
Interesting.
That was 2021 into 2022.
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