Tasha (Soraya's mother)

speaker

575 appearances 2 recordings 1 series first heard Jun 2026 last heard 1 Jul

Tasha (Soraya's mother)’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months

Recordings per month over the last 12 months — 2 in all, peaking in Jul 2026 with 1.

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The Telepathy Tapes · S2E36: Soraya's Story Part Two | Talk Tracks · 1 Jul 2026 podcast

And we realized that now she has a progressive neuromuscular disease.

And with that, there's no cure.

And with that, we know that the thing that would take her life is the respiratory component.

At that point, Sariah asked us, what's happening with my body?

And I think that's a very personal decision with a lot of families and like, how transparent are you?

And I think my husband and I went back and forth with it.

But we really looked at it as at that point, we had given her 10 years of therapy and

And the one thing that we wanted her to always have is her voice and an understanding of her body.

And so we explained to her that she had this condition and we tried to answer direct questions as we had been

guided by her amazing medical team and her therapist.

But then she said, is my life going to be shorter than expected?

And it was a very direct question.

Well—

We were guided, meaning my husband and I, to answer direct questions.

And while we thought we were prepared because she was asking questions like what is the ventilator for and if I do more physical therapy, can I get stronger?

And we said no because your muscles are getting weaker.

And then she said, well, how is my heart?

And so we could answer these very specific questions.

But when it got to that question, we weren't expecting that.

And so we gave each other a look, like some couples do, where we think we can communicate effectively.

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