Tina Knoll

Unfortunately, things got complicated on Tuesday, 11-17-15. My blood work came back bad. Potassium, magnesium, protein levels, and HGB were low. And the worst of all, my cortisol level was zero. I was back in adrenal insufficiency. That was really the worst possible news I could receive this morning.

Unfortunately, things got complicated on Tuesday, 11-17-15. My blood work came back bad. Potassium, magnesium, protein levels, and HGB were low. And the worst of all, my cortisol level was zero. I was back in adrenal insufficiency. That was really the worst possible news I could receive this morning.

Unfortunately, things got complicated on Tuesday, 11-17-15. My blood work came back bad. Potassium, magnesium, protein levels, and HGB were low. And the worst of all, my cortisol level was zero. I was back in adrenal insufficiency. That was really the worst possible news I could receive this morning.

Due to high risk for complications from adrenal insufficiency, including death, my ketamine coma got postponed for another day. I had to be re-evaluated by Pete's ICU doctor, who then consulted Pete's endocrinology for more brain knowledge. This disease is very rare and especially more rare in children. So there are still many unknown phenomena.

Due to high risk for complications from adrenal insufficiency, including death, my ketamine coma got postponed for another day. I had to be re-evaluated by Pete's ICU doctor, who then consulted Pete's endocrinology for more brain knowledge. This disease is very rare and especially more rare in children. So there are still many unknown phenomena.

Due to high risk for complications from adrenal insufficiency, including death, my ketamine coma got postponed for another day. I had to be re-evaluated by Pete's ICU doctor, who then consulted Pete's endocrinology for more brain knowledge. This disease is very rare and especially more rare in children. So there are still many unknown phenomena.

The doctors are still learning more about RSD each day from each RSD case they get. My case will help other RSD patients in the future. And the hope is that maybe one day the FDA will approve ketamine coma in the U.S. It is really sad for American citizens to go out of the country in Mexico to receive this type of treatment.

The doctors are still learning more about RSD each day from each RSD case they get. My case will help other RSD patients in the future. And the hope is that maybe one day the FDA will approve ketamine coma in the U.S. It is really sad for American citizens to go out of the country in Mexico to receive this type of treatment.

The doctors are still learning more about RSD each day from each RSD case they get. My case will help other RSD patients in the future. And the hope is that maybe one day the FDA will approve ketamine coma in the U.S. It is really sad for American citizens to go out of the country in Mexico to receive this type of treatment.

So far, I am the youngest child in history who has developed severe generalized RSD in very short period of time. And I am the first youngest child in history who is going to be placed in high dose ketamine coma. It's my last and only chance for better quality of life.

So far, I am the youngest child in history who has developed severe generalized RSD in very short period of time. And I am the first youngest child in history who is going to be placed in high dose ketamine coma. It's my last and only chance for better quality of life.

So far, I am the youngest child in history who has developed severe generalized RSD in very short period of time. And I am the first youngest child in history who is going to be placed in high dose ketamine coma. It's my last and only chance for better quality of life.

getting rid of pain, dystonia, allodynia, and maybe a chance for being able to stand or walk one day again, this procedure is very high risk in my complex case due to the fact that I have immunodeficiency and very poor nutritious status and now very severe adrenal insufficiency.

getting rid of pain, dystonia, allodynia, and maybe a chance for being able to stand or walk one day again, this procedure is very high risk in my complex case due to the fact that I have immunodeficiency and very poor nutritious status and now very severe adrenal insufficiency.

getting rid of pain, dystonia, allodynia, and maybe a chance for being able to stand or walk one day again, this procedure is very high risk in my complex case due to the fact that I have immunodeficiency and very poor nutritious status and now very severe adrenal insufficiency.

I was told today I am high risk patient for developing infection sepsis during the coma, difficulty weaning off the ventilator after coma, needing blood transfusions and a total body failure, death as a result of adrenal insufficiency and other complications. Despite the risks and complications, there are several good things going for me right now.

I was told today I am high risk patient for developing infection sepsis during the coma, difficulty weaning off the ventilator after coma, needing blood transfusions and a total body failure, death as a result of adrenal insufficiency and other complications. Despite the risks and complications, there are several good things going for me right now.

I was told today I am high risk patient for developing infection sepsis during the coma, difficulty weaning off the ventilator after coma, needing blood transfusions and a total body failure, death as a result of adrenal insufficiency and other complications. Despite the risks and complications, there are several good things going for me right now.

My young age, very early RSD, CRPS diagnosis, hundreds of angels watching over me, and God working through the doctor's hands and brains to get me a remission. I am hoping for a miracle ketamine coma! Exclamation point, smiley face.

My young age, very early RSD, CRPS diagnosis, hundreds of angels watching over me, and God working through the doctor's hands and brains to get me a remission. I am hoping for a miracle ketamine coma! Exclamation point, smiley face.