Episode 500: 10 Years Later: How We’ve Changed, How the Movement Has Grown (And What Comes Next)
episode
Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
1h 0m
1 speaker
8 chapters
transcribed 1 hour ago
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Why is this episode a special 10‑year, 500th milestone for Tilt Parenting?
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I'm Debbie Rever and this is Full Tilt Parenting. This is a very special episode. This is officially my 10-year anniversary to the day special episode, and it's also episode number 500. So kind of a big deal. People have been asking me what it is like to have started this 10 years ago, and honestly, I don't even know how to answer them. I can't believe it's been 10 years. I can't believe I've been doing this show for 10 years. And I think about how much my life has changed, how much the neurodiversity movement has changed. Just so many things to reflect on. And I wanted to mark this anniversary in a way that felt really true to what Tilt has always been about, which is not about me. It's not about this show.
It is about you guys out there. It is about this community. It's about all the parents who have found their way to tilt over the years. Sometimes at three in the morning on random Google searches, often in tears, feeling overwhelmed and hopeless and confused, and often just wondering if there's anybody else out there who understands what's going on in their families. So I spent a lot of time trying to figure out what to do for this episode. Some people suggested doing a panel discussion and bringing on some past guests, and I just couldn't quite figure out what was right. And then it hit me at five in the morning. Often I wake up early and that's when I start thinking about problems that I'm noodling on.
And I just realized one morning that this episode should be a celebration of our community and really in your own words. So in a few minutes, you're gonna hear from some of the parents and community members who have been part of the tilt journey over the years, people who have agreed to share a little bit of their story, of their experience and what this ride has been like for them. I'm so excited to share this with you. I'm so honored to have had these conversations and yeah, just meant a lot for me to get to sit down with these folks and now to get to share with you is just really cool. But before I get into that, I wanted to share something with you that I've just put together and I'm really excited to get out into the world.
So last summer, you guys might have participated in this. Last summer I did something I'd been wanting to do for a really long time. I sent out a survey to parents of neurodivergent kids. So when I first launched TILT back in 2016, the whole year prior to that, I did a lot of research and I Started with a survey because I wanted to know that other parents were struggling with the same things that I was. So it just seemed like the right time to go back and do that again and find out where people are. And I this is beyond the tilt community. I just connected with parents of neurodivergent kids all over the world and I asked them to tell me the truth about what their lives are really like. Like. I had over 400 parents respond and yeah, I went into this thinking I knew what they were gonna say.
I mean, I've been doing this work for the past decade and I've talked to thousands and thousands of parents in this work. And I have a pretty good sense of the landscape, right? But seeing it all together. It just hit me differently. It was really incredible when I got all of the feedback in and there were a lot of open-ended questions. So I got such interesting responses about what was really going on in their lives. So for example, I asked parents to rate their biggest challenges on a scale of one to five. And the thing that scored the highest above school struggles, above financial strain, above trying to figure out how to navigate their child's behavior was this, the lack of understanding of neurodivergence in our communities, in our schools, and in our social circles.
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Chapters
8 chapters
1
Why is this episode a special 10‑year, 500th milestone for Tilt Parenting?
0:00–6:46
2
What did the new parent survey reveal about the biggest challenges families face?
6:46–13:44
3
How have visibility and language around neurodivergence changed over the past decade?
13:44–21:56
4
What personal growth stories did community members share about their parenting journeys?
21:56–28:23
5
Where do parents think the neurodiversity movement should focus its energy next?
28:23–35:28
6
What advice do long‑time community members wish they’d received when they first started?
35:28–42:45
7
How can schools, healthcare, and other systems better support neurodivergent families?
42:45–50:18
8
What are the next steps for the Tilt Parenting community and how can listeners get involved?
50:18–1:00:05
Speakers
1 identifiedMore from Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
TPP 266a: A Conversation with Poet and Advocate LeDerick Horne
TPP 522: A Whole Child Approach to ADHD with Phil Boucher, M.D.
TPP 091a: A Conversation With Steve Silberman About His Book “Neurotribes”
TPP 521: A Conversation with Dr. Peter Gray About Restoring Childhood
TPP 253a: Advocate and Author Jonathan Mooney on Why Normal Sucks
TPP 520: Dr. Özgür Bolat on Why Rewards Backfire and the Real Science of Motivating Kids