TPP 099a: Barry Prizant Talks About His Book "Uniquely Human"

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What motivated Barry Prizant to pursue a career in autism advocacy?

Debbie Reber 0:00
Hey there, it's Debbie. Today's episode is a special re-release of a favorite conversation from the archives. Unless you're a longtime listener of the show, there's a good chance you haven't heard this one before. And even if you have, you just might get something completely different from it this time around.
Barry Prizant 0:16
So often what we have done has been done with all good intentions. It's totally understandable why a parent may want their child not to engage in behaviors that look different or that are attention-getting in public or that may be stigmatizing for a child. But the bottom line is, what are we communicating to a child if we're always saying, stop that, don't do that, always correcting? And so there's a lot of attention now being paid to the impact of what we do on a child and eventually an adult's self-esteem.
Debbie Reber 0:51
Welcome to Tilt Parenting, a podcast featuring interviews and conversations aimed at inspiring, informing, and supporting parents raising differently wired kids. I'm your host, Debbie Reber, and today's episode features a powerful and thoughtful conversation with Dr. Barry Prezant, one of the world's leading authorities on autism. Barry is recognized as an innovator of respectful, person- and family-centered approaches for individuals with autism and neurodevelopmental disabilities. He has more than 40 years of experience as a scholar, researcher, and international consultant, and he's an adjunct professor at Brown University, a speech-language pathologist, and director of child communication services, a private practice.
Debbie Reber 1:32
He's also the author of the must-read book, Uniquely Human, A Different Way of Seeing Autism, which suggests a major shift in our understanding of autism. Instead of classifying autistic behaviors as science or pathology, he sees them as part of a range of strategies to cope with a world that feels chaotic and overwhelming. And as you listen to our conversation, you'll know exactly why I was so excited to bring Barry onto the show. He is at the forefront of the revolution and helping to change the way neurodiversity is perceived in the world. And frankly, I'm just so grateful there are people like Barry in the world doing this critical work. So without further ado, here is my conversation with Barry.
Debbie Reber 2:16
Hey, Barry, welcome to the podcast.
Barry Prizant 2:19
Thank you so much, Debbie. It's a pleasure to be here.
Debbie Reber 2:21
I'm really looking forward to this conversation and just getting a chance to talk with you about your work, your incredible body of work, and you've been doing this work for so many years. And I really want to learn more and introduce our listeners to your book, Uniquely Human, in case that hasn't been on their radar yet. But before we get started into the meat of our conversation, could you tell us a little bit about just your story? I'm fascinated by how you came to do this work and how long you've been doing it.
Barry Prizant 2:52
Yeah, well, my story goes way back, and I love to share kind of the early roots, because sometimes younger professionals or even people who do not work in the field of supporting and understanding people with disabilities, that sometimes very early experiences are so formative. So I actually started as a teenager working in summer camps. in residential summer camps, mostly in the Northeast. And these were summer camps for children and adults with various labeled disabilities, ranging from autism to emotional behavioral disorders to learning disabilities to what we now refer to as intellectual disabilities. And those experiences were so important for me because I was a caregiver. living with people, and I was responsible for their welfare, for making sure they had a good time and that they were safe.
Barry Prizant 3:47
So from very early on, I had the experience of what many families, as they often say, live 24-7. That was before I got into academia. I was doing that for a number of years. Academically, in college, I was very interested in language and language development. Actually, I was a failed German major and then became a psycholinguistics major, which was a new field at that time.

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