TPP 179a: 12-Year-Old Rylan Talks About Growing up with Tourettes and Autism
episode
Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
37 min
1 speaker
5 chapters
transcribed 15 hours ago
Transcript
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What is the main topic discussed in this episode?
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Hey there, it's Debbie. Today's episode is a special re-release of a favorite conversation from the archives. Unless you're a longtime listener of the show, there's a good chance you haven't heard this one before. And even if you have, you just might get something completely different from it this time around.
So yeah, his brain is exhausted. I didn't I don't know that I really understood that until we started doing this book and he started drawing pictures about his brain and then describing what that feels like. So it definitely helped me get more of a visual. as far as when he walks into school, kind of what he's up against. All day long.
Welcome to Tilt Parenting, a podcast featuring interviews and conversations aimed at inspiring, informing, and supporting parents raising differently wired kids. I'm your host, Debbie Rieber, and today is a special episode as it's a mother-son conversation about growing up with Tourette's and autism. My guests are Gwen Vogel Gong and her 12-year-old son Rylan. Gwen and Rylan have teamed up to write a one-of-a-kind picture book called If I Squeeze Your Head, I'm Sorry. They wrote the book to uplift, educate, create dialogue, entertain, and allow readers to enter the brain of a child who sees, feels, and understands the world from a refreshingly unique perspective. Their book reminds us how important it is to listen to each other in an effort to truly understand and to assume immense value in one another.
Gwen and Ryland let me have a sneak peek of their book and I absolutely loved it. They sent it to me a while back. I read it and I thought I have to have you on my show. So I was very excited to share their story and to be able to share their vision with you today. I hope you enjoy our conversation.
What is the purpose of the book "If I Squeeze Your Head, I'm Sorry"?
Oh, and if you're interested in supporting the book launch of If I Squeeze Your Head, I'm sorry, the book officially launches a on November fifth. And now here is my conversation with Gwen and Rylan. I'm really excited. I was um you know, I get a lot of emails about people sharing what they're doing about the podcast and but I got yours and I took one look at your book and I was like, I have to have you on the show. So
Oh, thank you. That's so sweet. Yeah, we're pretty excited. It's uh turned out to be such a fun project for for both of us. I think Ryland's like, why are we still talking about this book? 'Cause it was like a year ago that I did this, but You know that's just an issue of not understanding timing of publishing. Yes.
Oh goodness, publishing. It's years and years sometimes. Um years and years. It is. Oh
my hard work. It is,
but at the end you have a book. The
million side. We're getting started on writing his next um books just in preparation to keep this going 'cause all of his words are, you know, two years old now.
What I wanna do for my like next book is like the dragon I'm I wanna make a dragon series where Um, me and a Minecraft person named Steve go on this like awesome adventure.
Mm. I like it.
That's very exciting. I have to tell you, Rylan, that I have a son who's just turned fifteen years old and how old are you, Rylan? You're twelve. Okay. I think when Asher was about your age, eleven or twelve, he wrote a couple of Minecraft themed little novels. Not about dragons, but um But in the Minecraft world and it was such a fun project for him to work on.
Yeah, we are big Minecraft fans. He's sitting here with a Minecraft book, you know, just in case he gets so bored. Yes. Always have to have a plan D.
And a plan C and a plan D. And a play on me. Well, do you do you guys wanna take a minute and you can both share however you wanna do this? I would love if you could tell the listeners about the book that you wrote together.
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Chapters
5 chapters
1
What is the main topic discussed in this episode?
0:00–2:21
2
What is the purpose of the book "If I Squeeze Your Head, I'm Sorry"?
2:21–5:25
3
How did Gwen and Rylan create the book and what inspired its visuals?
5:25–10:47
4
What challenges did they face publishing the book and when will it launch?
10:47–18:21
5
How does Rylan describe the experience of living with Tourette’s and autism?
18:21–37:37
Speakers
1 identifiedMore from Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
TPP 266a: A Conversation with Poet and Advocate LeDerick Horne
TPP 522: A Whole Child Approach to ADHD with Phil Boucher, M.D.
TPP 091a: A Conversation With Steve Silberman About His Book “Neurotribes”
TPP 521: A Conversation with Dr. Peter Gray About Restoring Childhood
TPP 253a: Advocate and Author Jonathan Mooney on Why Normal Sucks
TPP 520: Dr. Özgür Bolat on Why Rewards Backfire and the Real Science of Motivating Kids