TPP 226: Autism in Black's Maria Davis-Pierre on ASD, Stigma, Cultural Impact, & the Black Community

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What personal experience led Maria Davis‑Pierre to create Autism in Black?

Maria Davis-Pierre 0:00
We have stigmas within our community and outside of our community that we have to deal with. When someone sees our child, the first thing that they're going to notice, of course, is that our child is Black before anything else. And we know, of course, with what currently is going on in the world that, you know, being Black comes with a lot. So when they first see your child and that child is Black, those preconceived biases come into play.
Debbie Reber 0:29
Welcome to Tilt Parenting, a podcast featuring interviews and conversations aimed at inspiring, informing and supporting parents raising differently wired kids. I'm your host, Debbie Reber, and I have such a good conversation today for the show. My guest is therapist, coach, speaker, advocate and author Maria Davis-Pierre. Maria is the founder of Autism in Black, which aims to provide educational and advocacy services to Black parents who have a child on the spectrum, as well as to bring awareness to autism and reduce the stigma associated with a diagnosis in the Black community. I first read about Maria in an article in Forbes magazine highlighting the additional fears and worries parents raising kids of color face when their kids also have special needs.
Debbie Reber 1:18
Autism in Black was born out of Maria's personal journey of having to tirelessly advocate to ensure her daughter got the diagnosis she knew she needed at an early age. This is such an important topic, and we cover a lot of ground in our conversation. Maria delves into the stigmas Black parents face both within and outside the Black community, how and why she teaches parents to advocate not just for their children, but also for themselves, the difficulties Black children face in getting support in schools, the importance of cultural responsiveness from healthcare and social workers, and so much more. This is an episode everyone needs to hear and understand. I hope you get a lot out of it. Thanks so much.
Debbie Reber 2:02
And now here is my conversation with Maria. Hey, Maria, welcome to the podcast. Hi, thank you for having me. I'm so happy to have this conversation for the show. And I would love to actually start by hearing a little bit about your personal story. And as part of that, I think this is probably very much wrapped into what you do, but your personal why for the work that you do in the world.
Maria Davis-Pierre 2:33
Okay, so I am a licensed mental health counselor in Florida. Prior to having my daughter, my niche was not anything autism-related, but then we had our oldest child, and around six months, I started to notice things that would be characteristics of autism. I just pushed it to the side, but then at 10 months, my daughter started to show a lot more characteristics. She started to actually regress in her speech. She stopped saying words that she knew that she was saying prior to this point of regression. So at that point, I knew, okay, we need to start getting the ball rolling on getting a diagnosis because early intervention matters, as we all know. So we went to our pediatrician. Our pediatrician was like,
Maria Davis-Pierre 3:27
oh, she was a preemie, let's give her time. I had to tell the pediatrician, no, you know, we really want to make sure we get her diagnosis so we can make sure we're getting all the interventions that she may need. So we went to early step because she was younger than three. And, you know, when most parents go to early steps, it's like five healthcare professionals in there testing on different developmental milestones. So you have the developmental pediatrician, the OT, the SLP, And they're all testing her. And they were like, yes, you know, we do think she is autistic, but because she's not three, we don't want to give her an official diagnosis. But you can go to a pediatric neurologist and they can give the diagnosis.
Maria Davis-Pierre 4:12
So after finding the one pediatric neurologist, we went there. He made us do DNA testing, tests that we would have already known by that time If she had a particular diagnosis he was looking for. But of course, they have to roll out. We did that. He was like, yeah, I do agree. But I also want to wait until she was three.

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