TPP 376: Kelley Coleman on Everything No One Tells You About Parenting a Disabled Child
episode
Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
42 min
1 speaker
6 chapters
transcribed 14 hours ago
Transcript
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Transcript generated automatically by AI and may contain errors.
What challenges do parents face when first navigating the system for a disabled child?
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It took me years, not days, not weeks, not months, but years to get to where I am now. And for me, it really came from getting to know my child as he is. And eventually it took way too long. I could have done this faster and sooner. But building a support network, whether it is a the educators, the doctors, the therapists who come in and who are saying, trust me on this one, your kid is not broken. We do not fix children. Children are not broken. You know what we're gonna do? We are gonna find out who he is and what he loves, and we are going to build from there.
I'm Debbie Reaper and welcome to Tilled Parenting, a podcast featuring interviews and conversations aimed at inspiring, informing, and supporting parents raising differently wired kids. Have you ever felt paralyzed by all the stuff involved in charting a path and advocating for your child? I'm sure I'm not the only one who's put off calling the insurance company or establishing a relationship with the new health care provider because at the time it just felt too overwhelming and daunting. But what if there was a resource that provided everything parents and caregivers need to know about navigating all the complex but critical aspects of raising a neurodivergent child? How great would that be? I've got some good news for you.
Today's guest, Kelly Coleman, has created that resource. It's her new book called Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports. Kelly's book draws upon over a decade of experience, including her own experience parenting a child with multiple disabilities. It's an honest, relatable, and actionable roadmap to the practicalities of of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about everything from diagnosis, schools, and doctors to insurance, financial planning, disability rights, and what life looks like as a parent caregiver. In this conversation, Kelly, a feature film development executive, turned author and advocate for parent caregivers and individuals with disabilities, shares so many insights from her book, including strategies for navigating insurance companies, working with medical teams and other daunting systems, future care planning, and so much more.
Seriously, Kelly has created such an incredible resource in this book because she has researched and Mapped and made simple and doable the key things and tools parents need to stop wasting unnecessary time, money, and stress as they navigate this journey. I hope you enjoyed the episode and please share it with others who would benefit from Kelly's insight and positive approach so that other parents can spend less time filling out forms and more time loving their children exactly as they are. Hello Kelly, welcome to the podcast.
Thank you so much for having me and for all that you have created. I love that our worlds have crossed in this like reframe everything and we actually can support our kids and each other all at the same time. I just I love that.
Oh, well, thank you. Yeah. I'm so glad. And we have a mutual friend who helped facilitate our connecting in real life, which is great. Shout out to Claire. Yeah, I'm always so inspired when I connect with other humans, other parents, other moms who kind of embraced the pivot and leaned all the way in, which is certainly what you've done. I want to talk about your your new book and this mission that you're on that's kind of really taking off. Before we do that, could you give us a little bit of your story just so listeners have some context for how you came to be doing this work?
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Chapters
6 chapters
1
What challenges do parents face when first navigating the system for a disabled child?
0:00–8:02
2
How did Kelley Coleman’s personal journey shape the creation of her guide?
8:02–14:18
3
Why is distinguishing between parenting and caregiving important for families?
14:18–20:49
4
What practical strategies does the book offer for dealing with insurance and government benefits?
20:49–28:06
5
How can parents effectively communicate and collaborate with medical teams?
28:06–36:19
6
What steps should families take to develop a future‑care and financial plan?
36:19–42:16
Speakers
1 identifiedMore from Full-Tilt Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children
TPP 266a: A Conversation with Poet and Advocate LeDerick Horne
TPP 522: A Whole Child Approach to ADHD with Phil Boucher, M.D.
TPP 091a: A Conversation With Steve Silberman About His Book “Neurotribes”
TPP 521: A Conversation with Dr. Peter Gray About Restoring Childhood
TPP 253a: Advocate and Author Jonathan Mooney on Why Normal Sucks
TPP 520: Dr. Özgür Bolat on Why Rewards Backfire and the Real Science of Motivating Kids