Palliative Care in Nursing Homes: Discussion of a Multinational Trial with Lieve Van den Block

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GeriPal - A Geriatrics and Palliative Medicine Podcast 45 min 5 speakers 8 chapters transcribed 5 hours ago
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What is the PACE multicomponent intervention and why was it needed in nursing homes?

Eric Widera 0:00
Welcome to the Jerry Powell podcast. This is Eric Widera. This is Alex Smith. And Alex, we have a couple people in a room and one person Skyping over from across the pond. From across the pond, we have
Alex Smith 0:13
Lieve
Unknown 0:14
Vandenblok. Yes, perfect.
Alex Smith 0:17
Lieve Vandenblok. Lieve Vandenblok, a psychologist and professor of aging and palliative care at the Free University in Brussels, Belgium. Welcome to the Jerry Powell podcast, Lieve.
Unknown 0:28
Hello. Good evening for me. Good morning to you.
Eric Widera 0:32
Thank you for joining us, Liva. We have a couple other people in our audience. Would you guys mind introducing yourselves?
Lauren Hunt 0:39
Hi, this is Lauren Hunt. I'm an assistant professor in the School of Nursing Atlantic Fellow at the Global Brain Health Institute.
Evie Kalmar 0:47
And I'm Evie Kalmar. I'm a geriatrics and palliative care fellow here at UCSF.
Eric Widera 0:52
So we're going to be talking about your paper that was just published this week in JAMA Internal Medicine on, what was the title? The title was, I got it right here, The Effectiveness of a Palliative Care Program for Nursing Homes in Seven Countries, the PACE Cluster Randomized Control Trial, Seven Countries of Palliative Care Intervention. That's crazy. But before we talk about that, we always ask for a song recommendation. You have a song for Alex to sing.
Lieve Van den Block 1:19
Yes, I would love to hear Alloway Black's song on his mother, Mama Hold My Hand.
Alex Smith 1:26
Mama Hold My Hand. Now this is a challenge, a little soul.
Unknown 1:31
Mama hold my hand. I don't think I can cross this road by myself. Mama hold my hand. I don't think I can cross this road by myself Just a little bit of that.
Alex Smith 1:51
That was a challenge.
Eric Widera 1:53
Are we going to have a little bit more later?
Alex Smith 1:55
We'll have more later. We'll do the last verse, which is this is a beautiful song, by the way. I was playing more of it last night. Starts out talking about how as a little boy, he would hold his mother's hand. And then he grew up and didn't want her to hold his hand anymore. And then at the end of the song, it comes back to it. And I'll just read a little bit of the lyrics here. My mama's near the end of her years and her hair is gray. Sometimes I call her to ask if she would like to spend the day. Mama used to be strong, but she ain't now and she can't make her way. That's why I'm always around when she needs help. And here's what I say. Mama, hold my hand. I don't think you can cross this road by yourself.
Alex Smith 2:34
So now he's reaching out and holding her hand.
Unknown 2:36
That's
Alex Smith 2:37
really beautiful. Great. Is that
Eric Widera 2:38
why you picked the song?
Unknown 2:40
Yeah, it's a very easy song to understand, but still, I think it touches a lot of people.
Eric Widera 2:46
So before we go into the topic of the JAMA IM paper, I'd love to hear from you. How did you get interested in palliative care in nursing home settings to set us up for this paper?
Lieve Van den Block 3:00
I think it started when I did my PhD. I did my PhD on palliative care in primary care, studying, doing epidemiological research mainly, using GP networks to register deceased patients and In the data that I analyzed then, I was constantly, I think also by the literature, confronted with these underserved groups in palliative care. So people with dementia, people who are aging, and of course people in nursing homes where the two come together. So I think that's where the seed was planted.
Alex Smith 3:34
And you've done some preliminary work on this intervention. Maybe you could tell us about that preliminary work.
Lieve Van den Block 3:42
So the intervention originally was developed in the UK and it was called the route to success. And so there was mainly a lot of practice based evidence. And some people looking more at quantitative and qualitative research, but not really an RCT comparing this route to success with standard care.

How was the train‑the‑trainer model structured across seven European countries?

Lieve Van den Block 4:07
And so a lot of people in practice, we really felt this program was doing something in the UK. And a lot of people abroad said, yes, we can use this in this setting. So that's when we started to do the translation in all these different countries and and cultures. And we adapted the program cross-country and then called it the PACE Steps to Success program.
Alex Smith 4:32
I wonder if you could tell us a little bit more about what are the... So my understanding is this is a train-the-trainer program.

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