Serious Illness Conversation Guide: Podcast with Rachelle Bernacki and Jo Paladino

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GeriPal - A Geriatrics and Palliative Medicine Podcast 40 min 4 speakers 8 chapters transcribed 5 hours ago
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What is the purpose of the Serious Illness Care Program and why was this live podcast recorded?

Eric Widera 0:00
Welcome to the Jerry Powell Podcast. This is Eric Quadera. This is Alex Smith. And Alex, I see a couple more people in this room. More than usual that we have. Would you like to start off with some introductions?
Alex Smith 0:13
Yes, so on stage with us we are honored to have Ray Rachelle Bernacke and Joe Paladino, who are from Ariadne Labs, Harvard, Dana Farber Cancer Institute. They're both physician researchers. Welcome to the Jerry Powell podcast.
Rachelle Bernacki 0:28
We're delighted to be here. We're so excited to be here. Thank you.
Eric Widera 0:31
So we start all of our podcasts the very same way. Do you have a song request for Alex to sing?
Rachelle Bernacki 0:36
I do. How sweet it is to be loved by you by James Taylor.
Eric Widera 0:40
Great. And Alex, there are a couple other people in this audience. Uh are you gonna get them involved? Uh
Alex Smith 0:46
yes. So we could really use your help on the chorus. Everybody knows this song, right? I
Eric Widera 0:51
think so.
Alex Smith 0:52
All right. How sweet it is to be loved by you. Yeah. How sweet it is to be loved by you. It's great. I needed shelter of someone's arms And there you were I needed someone to understand my ups and downs And there you were With sweet love and devotion Deeply touching my emotion I wanna stop and thank you, baby. I just wanna stop And thank you, baby. How sweet it is to be loved by you.
Unknown 1:46
Yeah.
Alex Smith 1:49
How sweet it is to be loved by you. One more time, sing it out. How sweet it is to be loved by you. Yeah, nice. Woohoo, very nice.
Eric Widera 2:08
So Why did you pick that song?
Rachelle Bernacki 2:11
So um as you know my dad died this past October and uh this was a song I danced with him to my wedding and I think it just so embodies the way I feel about my dad. Um but I also think that there's a metaphor with palliative care and um You know, you needed someone to follow our ups and downs and there you were. And I I think that palliative care does that and um I think that everyone in this room does really hard work and so I love the stop and thank you. So everyone should just sort of thank themselves, I think, um, for doing the work that we do. Because it's it is really hard and uh I think it's important. So It's beautiful.
Alex Smith 2:53
Thank you for sharing that story.
Eric Widera 2:55
Um, so at 1:30 today, so a little what eight minutes ago, way more than eight minutes ago, uh, two papers just got published. This is a JAMA oncology paper uh evaluating intervention to improve communication between oncology clinicians and patients with a life-limiting illness. And also a JAMA internal medicine paper, effective serious illness care program in outpatient. Oncology done by your group. And we were hoping just to chat about kind of serious illness communication the project that you're doing, kind of these two articles. But before we do that, Maybe you guys can talk about how did you get interested in talking about serious synergy's communication?
Rachelle Bernacki 3:41
Sure, I can start. Um So I think there's a sense when you're doing clinical palliative care that the need is endless and and and that there's more um demand than we can ever possibly fulfill and I I definitely felt that and so um the opportunity to sort of go to colleagues and start moving this work upstream and outside of palliative care was just really appealing. And so, um, I was excited about it.
Eric Widera 4:12
So?
Jo Paladino 4:13
Yeah, for me I I trained in primary care and population medicine before I did my palliative care fellowship. And we thought a lot about how to improve care and outcomes for broad populations of patients. But one of the questions that we wrestled with constantly was how does that translate to the person right in front of you? And so when when I was fast forward when I was a clinical and then a research fellow in palliative care, Rochelle and m my mentor Susan Bloch as well. uh described the serious illness care program and they gave me our foundational tool the conversation guide And for me, it it really represented that bridge like between the population and the personal, because it had these really deeply intimate human questions that many of us know in palliative care get to the heart about what matters most to patients.
Jo Paladino 4:59
But the idea, as Rochelle said, was to make this accessible to broader populations of clinicians.

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