Understanding the Variability in Care of Nursing Home Residents with Advanced Dementia

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GeriPal - A Geriatrics and Palliative Medicine Podcast 44 min 3 speakers 7 chapters transcribed 7 hours ago
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Who are the expert guests and what is the focus of today’s discussion?

Alex Smith 0:02
The JerryPal podcast is brought to you by Archstone Foundation. Archstone Foundation, improving the health and well-being of older Californians and their caregivers.
Eric Widera 0:11
And supported by listeners like you, many of whom have donated on the JerryPal fundraising site, which you can find at www.jerrypal.org, big blue button, or through reviews, stars on your favorite podcasting app. Big thank you. Welcome to the Jerry Powell podcast. This is Eric Radera. This is Alex Smith. And Alex, we got a full house today. Who do we have with us?
Alex Smith 0:36
We have a wonderful full house today. Our first guest is Ruth Paulin Lopez, who's a geriatric nurse practitioner, and the Jocks Moore professor of gerontologic nursing at the Massachusetts General Hospital Institute of Health Professions. Welcome to the Jerry Powell podcast, Ruth.
Ruth Palan Lopez 0:53
Thank you. Thank you for having me.
Alex Smith 0:54
And we're delighted to welcome Joan Carpenter, who I just did the state of the science with at the AHPM Hypna meeting. Um, she's a geriatric nurse practitioner specializing in palliative care and assistant professor at the University of Maryland School of Nursing. Welcome to the JerryPal podcast, Joan.
Joan Carpenter 1:13
Thanks. I'm delighted to be here.
Alex Smith 1:15
And we have Caroline Stevens, who is a gerontologic nurse practitioner and gerosychiatric advanced practice nurse and the Helen Lowe Bamberger Colby, presidential endowed chair in gerontologic nursing at the University of Utah. I had to take a breath there. Welcome to the J JerryPell podcast, Caroline.
Caroline Stephens 1:33
Thanks, Alex. I know it's a mouthful. It's exciting to be here.
Alex Smith 1:36
And welcoming back to the JerryPelt Podcast for like our tenth time. We have Lauren Hunt, who is a nurse, uh practition nurse researcher and assistant professor at the UCSF School of Nursing. Welcome back to the JerryPelt Podcast, Lauren.
Lauren Hunt 1:49
It is so great to be back. Thanks, Alex.
Eric Widera 1:52
So we're going to be talking about nursing homes and advanced dementia.

What is the ADVANCE study and why does it matter for advanced dementia care?

Eric Widera 1:55
This came from a JAM IM study that Ruth just published, the advanced study of Association of Nursing Home Organizational Culture and Staff Perspectives. With variability and advanced dementia care. We're gonna dive into that study and others. I just wanna say one of my favorite studies, Ruth. It was like what, ten years ago you published an archives paper? I did. Yes, I did. I love that. Every time I quote that study all the time.
Alex Smith 2:23
That is like uh there are two studies that I give out as exemplars of like outstanding qualitative research. And one of them is Karen Steinhauser's uh Annals of Internal Medicine paper on In Search of a Good Death. And then the other is your paper on feeding tubes and nursing home culture uh associated with, you know, nursing homes with high rates of feeding tubes and low rates of feeding tubes.
Eric Widera 2:45
Oh thanks. Cause it just it's I I will have a link to it on our show on our show notes, but it just I love how it just paints a picture. And I think the same is true for this JAMA IM study. But before we talk about all that, I think somebody has a song request for Alex.
Caroline Stephens 3:00
Yes, Alex, I am requesting Kenny Chesney's while he still still knows who I am. Um as a very young caregiver myself for my parents who had advanced dementia, um, you know, as a teenager, like this was just a really powerful uh song that just hit home as a caregiver um and just the living with someone who has dementia and and knowing what's kind of on the horizon and and this this topic in Ruth's work in particular with feeding tubes was you know a decision that I had to make for my father many, many years ago, um twenty five, thirty years ago and so uh so bring it on.
Alex Smith 3:35
Thank you for the song choice, Carol.
Unknown 3:37
Drive a Chevy cause he drove Chevy. Like him, I'm a baseball fan. I'm going back to see him. While he still knows and Who I am? Mama says you can't remember. Daddy thinks that he still can. I'm going back to see him. Wally still low Who I am This time I'm gonna hug him. Instead of just shake it hand. Gonna tell him that I love him. Wally still know Who I am
Caroline Stephens 5:10
Thank you, Alex.
Eric Widera 5:12
Great song selection. We usually ask them ask ask why somebody chose it, but that that one kind of spoke for itself.

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