Dr. Bex
speaker
498 appearances
7 recordings
1 series
first heard Nov 2024
last heard Jun 2025
Dr. Bex’s voice in public audio — every appearance, attributed to the second.
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Appearances
And just so everyone remembers, you know, hospitals, doctors cannot provide any of the medical information or speak to any of the medical portions of the story other than what is in these court documents. And that's very minimal. So they cannot come out and say, but the patient had this or the patient had this. they have to rely on what their lawyers put out, I guess, through the courts.
the who what when and where of this story um so yeah so bex uh tell us tell us what this story is about who are we talking about so this all started um to be honest we kind of the further back we can go in the story it allows us to know a little bit more of why we got where we got i think so
To take you literally all the way back to 2003 is when Madison, who is the girl at the center of this story, so similar to Maya Kowalski, Justina Poletti are these names that you'll hear kind of coming up. So her name is Madison. She was born in 2003.
Interestingly, a piece of this story is that the mother, Dana Gaske, and the father, William Meyer, went through in vitro fertilization, it sounds like, at least according to the court documents, three times prior to conceiving Madison. She was born premature. They mentioned somewhere, I think...
a little bit over three pounds in weight and was the only child of Dana and William, both of whom worked for Kaiser Permanente. Dana was actually a nurse with Kaiser, and then it seems moved into more of an executive role. And then William also worked on the executive side of Kaiser, which is how they met.
And the court documents do go into their whole story, but we'll kind of jump ahead to when Madison becomes a preteen And she sounds like an active kid doing well in school. And then she started having issues with her knee and then with her shoulder. And I think the shoulder is the kind of the piece of this, but she dislocated her shoulder while at an intensive surf camp.
And that kind of started her sounds like her medical journey where she really started seeing multiple specialists about her shoulder. First ended up at Rady's Children's in San Diego and kind of that jumpstarted everything. So, I mean, Andrea and I have been through a lot of these cases, but I'm curious, Andrea, what your thoughts are on the pre-Madison story? Yeah.
Right. She is diagnosed with something called hypermobile Ehlers-Danlos syndrome. And within a few months of kind of all these this diagnosis, she is already on like a modified school schedule just because of her pain issues, it seems at that time. And that also always sticks out to me. And then quickly from this diagnosis. diagnosis of the shoulder dislocation.
She has her first surgery, which is a surgery on her shoulder. I just want to kind of give a few more details about how her story with Ehlers-Danlos started and with this shoulder issue. So after the first surgery, you know, she thought everything was fixed. And then very quickly, the pain and all of the symptoms started up again. They
Note many times that she has multiple dislocations of the same shoulder and that there is significant pain. And I think that is that piece that will feel familiar to people who have followed some of these other stories. But pain to the point she was doing, you know, biofeedback, the TENS, which is kind of those little shock therapy to the area.
She was seeing a pain psychologist, which I think is a wonderful piece, taking medications. And so the injuries were in 2016. And now we're already kind of jumping to 2018, where she has now completed months of like an outpatient pain program, actually at Rady's. Her pain was still severe. At that point, she was on what's called a 504B plan at school.
So she had even more kind of restrictions or special modifications made to her school schedule.
The two surgeries were at Rady's with an orthopedist there. Some of the genetic diagnoses, like the diagnosis of Ehlers-Danlos came outside of Rady's, but it was someone they were referred to. And it sounds like actually Kaiser was the hub at first, because when you work for Kaiser, your insurance is Kaiser. And so most of your, like her primary care physician was from Kaiser.
When I did my training in California, there was a Kaiser down the road. They did kind of the basics of of pediatrics. They had some of the pediatric specialties, but if things kind of became a little bit more complicated or more extensive, then they would refer to us at the local children's hospital, especially if they didn't have a specific kind of surgical option or things like that.
So it does sound like Kaiser initially referred them to Radiesse to go to this orthopedist who specialized in shoulder procedures. We are actually going through her second shoulder surgery. They created a cage around her shoulder joint with ligaments from other people or something and somehow recreated this cage around her shoulder and just to try to keep it in place.
So it sounded like this was a little bit more extensive, but it was still with this surgeon At Rady's during an admission for severe pain after this surgery. So now two surgeries and still with severe pain, unrelenting pain. She is admitted to Rady's and she is diagnosed with complex regional pain syndrome, which
Anyone who went with us in the Kowalski case, that was the diagnosis that really played center stage. I would say in Madison's story, the Ehlers-Danlos becomes more of the story, but this was an interesting little sidebar where she was on the inpatient unit requiring pretty strong pain medications. And then they recommended, actually at Rady's, that she go to an inpatient pain program.
So complex regional pain syndrome, actually in this case, does seem like there may be parts of it that fit. So typically complex means it's difficult. It's difficult to treat. There's a lot of kind of comorbidities that come along with it, but it is a regional pain syndrome. So she injured her shoulder.
The pain of CRPS would be expected to be kind of in that shoulder that she injured and then distal to it. So through the arm area. where the injury occurred. Often with CRPS, you get other symptoms than pain. So neurologic changes, vascular changes, all of these other things in the extremity that is involved.
What is rare in CRPS is kind of more what we saw in the Kowalski case, which is kind of this whole body pain, all starts at the same time, very unrelenting. It does seem like at least at the beginning of this story that her pain was mostly in the shoulder and in that general vicinity, although... The information is limited.
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