Elliot Gannon
speaker
994 appearances
1 recordings
1 series
first heard Jun 2026
last heard 7 Jun
Elliot Gannon’s voice in public audio — every appearance, attributed to the second.
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recordings per month · last 12 monthsRecordings per month over the last 12 months — 1 in all, peaking in Jun 2026 with 1.
Appearances
They kind of explained basically what I said to you there.
Like, it's, you know, he's born with, probably without the gene or faulty gene.
He has two copies of the SMN2 gene.
But he's, obviously, he's going to get weaker.
But they said, look, great news.
There's a treatment.
There's new treatments.
And, like, they're only around a couple of years.
Like, as in...
other kids have got them years ago but these treatments I suppose have only been signed off essentially like so like for public you know whatever like you know yeah yeah we were devastated so devastated I remember I rang my sister like and I was just like I was okay like I was okay we were having the conversations one thing I think about us that I noticed through this whole thing was
we were always really strong when we needed to be like, you know, around the doctors.
Like we, we were conscious, we were like, we were very logical.
We wanted to take in the information because we wanted to figure out what's going on.
We wanted to research it, like, you know, and it'd be almost the times after I'd bring someone, like I rang my sister and I was like, look, it's type one SMA or whatever, like, you know, and I'd already talked to her about as well.
So like, she was like, well, she was shocked.
Like, and I just broke down then, like, you know, it was devastating.
Like, you know, like I said, it was to me, it was a death sentence.
So we kind of did a walk, went back into the hospital and they said, right, so look, there's treatments and we're going to send them to Temple Street tomorrow.
You're going to meet with the consultants and they're going to talk to you about the treatments available.
And like from the conversation we had with them and COH, it was like, everything's going to be great.
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