Jesy Nelson
π€ SpeakerAppearances Over Time
Podcast Appearances
So I did all of that.
Then they said, okay, cool.
We're going to assess the babies now.
You know, and you're like, oh my gosh, like how many fucking times do we need to keep assessing the babies?
Like, I've done this so many times now.
Like it's, and I get it.
They have to.
They have to.
Yeah.
And I'm just like, just do the fucking bloods at this point.
Like, really?
So they do their assessment.
They say the same thing.
You know, it's 95, we're 95% sure they've got SMA type one, but until we get these bloods done.
So, you know, we need to get these bloods done.
Also, we need you to sign these forms now that you are okay with them starting getting this treatment because time is of the essence now, obviously, as you know.
And then they start telling you what your baby's survival rate is.
And it's just, yeah, it's a lot.
And then they said, okay, well, it should take about three days for the bloods to come back.
And then, you know, once we've got the confirmation, they can start the first course of treatment.