Jesy Nelson
👤 SpeakerAppearances Over Time
Podcast Appearances
And then we took them home.
And then we got a Zoom call.
And that was when they told us.
But I was already there.
I already knew.
There was no shock for me when they told me.
Thank you.
Oh, they're amazing.
But they've always been amazing.
Like, you know, even through everything they've gone through, they've always just smiled and been so happy and showed so much resilience.
And it's like the one thing I always take from it is that they don't know.
You know, this is all they've ever known, which is so sad, right?
But, you know, they're not old enough to know what's going on.
And they have each other.
And do you know how blessed I am that they have their twins and they're going through it together.
They're never going to be alone.
And that just like makes me feel so much better about the situation.
But, you know, they're doing as good as they can be right now.
But the thing is with SMA is it's like everything's so uncertain.
And that's the part that can really drive you crazy because you