Rachelle Bernacki
speaker
424 appearances
3 recordings
1 series
first heard Mar 2019
last heard Dec 2021
Rachelle Bernacki’s voice in public audio — every appearance, attributed to the second.
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Appearances
And it's for patients with serious illness or life limiting illness, and it's a different conversation.
Honestly.
Um asking that question, um, what abilities are so critical to your life, or how much are you willing to go through for the possibility of more time is a question that people with serious illness think a lot about.
And for a healthy person it's a little more abstract.
Um so I think it's a different conversation, but it's a piece of advanced care plan.
There was it it there really wasn't enough data there to look at.
We will be doing a second paper that Justin will write about the actual data from the goal concordant from the life priority scale and that will be published at a later date.
So um
So we had seventy-two percent participation at Dana Farber, which we were pretty proud of um from the clinicians, which is fantastic.
And we had uh participation right in patients that was
Pretty similar to other trials of seriously ill patients.
Um and so like I said, the the death rate was much lower than we expected, which you know, it's hard to get upset about that.
Um but but and then the bereavement surveys were much harder than we anticipated.
So
And having the match.
So I think uh picking a s you know, I I think a simple, you know, is pick a simpler outcome that's more upstream to your intervention.
two great questions.
Um
So the first question, the the translation um question is great.
Uh we have the guide translated into ten languages that's available on the community of practice that you can download for free.
Showing 341–360 of 424 · page 18 of 22
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